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New here and have working diagnosis of Lupus

Posted by izzybizzy @izzybizzy, Oct 23, 2025

I have been told I have “presumed Lupus”, but no official diagnosis yet. I had a fracture earlier this year which didn’t heal well on my finger, now diagnosed with CRPS, and osteoporosis. I have had a lot of problems over the years with Achilles tendonosis, painful joints, fatigue, I have microscopic colitis, SIBO, and really bad shoulder and neck pain. Quite a soup of issues!! No real diagnoses just being shuttled from specialist to specialist. Thoughts?

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fairn | @fairn | Oct 24, 2025
In reply to @izzybizzy "@fairn that’s so interesting and thank you for sharing your story with me! I’m sorry you..." + (show)
Profile picture for izzybizzy @izzybizzy

@fairn that’s so interesting and thank you for sharing your story with me! I’m sorry you have these issues… I did research and saw a link to auto-immune disease and CRPS and also osteoporosis! I’m starting with a new integrative medicine doctor soon, and hopefully she will look more at the big picture rather than just my symptoms finally. I am sure there is a correlation to all my woes it just takes a savvy specialist to see it. My rheumatologist is an NP, not MD but I don’t know if that makes a difference, she’s very nice and thorough, but I will point all this out to her in January also. Thank you and hoping you feel better, though I hate when folks say that to me I must say, but here’s hoping to some relief!!
Hydrochloroquine was not great for me, very bad depression with it

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@izzybizzy Thanks for your reply - I have osteoporosis as well. It seems that doctor's offices are relying heavily on NPs and PAs these days. My rheumatologist is very good, but took several months to get into. It looks like I will be seeing him as needed and his NP for management. I have only been on the Hydroxychloroquine for a few weeks, but I wondered whether it might have depressive side effects, so it's interesting to hear that you experienced that. I am trying to keep a record of any side effects just to be aware of how I am responding. I liked that the rheumatologist stressed that test results were helpful, but clinically it was clear I had inflammation so he was going to address that condition. I hope you are able to find a good team who will listen and respond well!

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