New Dermatographia: What is helping you?

Posted by jackographia @jackographia, Nov 28, 2021

If you don't know what dermatographia is, please feel free to read and participate, but this discussion is aimed at people who currently suffer from this illness. I have questions that I don't think anyone without the condition can answer. The onset of my symptoms began about a week after receiving the Moderna covid booster shot. (My 3rd covid shot) Which may or may not be a factor. My symptoms began with full body itching, where any scratching would lead to very easy skin reddening. I went into an urgent care soon after and was prescribed steroids (prednisone) and antihistamines. While these work to lessen the itch GREATLY, my skin still reacts to even slight scratches or pressure with easy redness. My condition is largely self-diagnosed, but my primary care physician agrees with it.

There is so little relative information about dealing with this illness that I feel like I need to reach out here to ask. If you have/had this condition:

1. Did you (like I am) develop a tightness in your esophagus? or any bowel issues?
2. Does your face get flushed, fully red and feel warm?
3. Do you know of any support groups that I can reach out to for information and solidarity?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

@kbjohnson3

Exact same thing happened to me. 1 week after my Moderna booster on December 10th I broke out into full body hives, severe swelling of my face, throat and ears. Went to urgent care got steroids and Benadryl. The swelling and most of the itching went away after about a week but I still have the skin writing rash.
My skin will feel really hot and all of the sudden the rash appears and disappears after a while.
I googled the symptoms tonight and found Dermatographism then stumbled upon this site.
I’m waiting for my allergist referral to make an appt with me. Has anyone got any answers about this yet?

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I have the SAME thing as everyone here. I am so sorry!!!! I got my Moderna booster on 12/3 and 11 days later developed an itchy scalp, neck, ears, and they were very hot. I had also gotten another ear piercing on December 7 and thought it was maybe a reaction to that. I took out the piercing in case it was a nickel allergy. Unfortunately, it seems like I am having a reaction to the booster just like everybody else. It’s now been three weeks of itching and dermographia. Unfortunately, I cannot take Allegra and Zyrtec as I am allergic to them and can only take Claritin which I take every morning. I’ve tried Benadryl, I’ve tried Zantac and I put hydrocortisone cream on whatever areas itch. I feel like some days it is getting better though at night, it seems to get worse. The tightness in my chest has dissipated which is good and I keep telling myself that the itching is less each day but I think I’m just being optimistic!! I saw an allergist in January 2021 after I developed COVID arm from my first Moderna vaccine. She said that I am probably allergic to PEG but that I should be fine going forward with vaccine #2. So I got it and was fine outside the normal reaction of fever, aches, headache, chills. Now this after the booster!!

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I am having the same exact skin problems following the Moderna booster but no other issues. (First 2 shots were also Moderna in January and February 2021) I received the booster on December 16 with the same slight reaction that I get with most vaccines. On December 31 though, I woke up with full blown Dermatographia with no history of skin problems aside from a shellfish allergy. Anytime I scratch/itch/rub my skin, anywhere, it breaks out in hives and swelling. I am 100% for vaccines and did not even suspect the vaccine as a cause. I was trying to look up whether the virus itself could cause this and found this thread. I am glad I found this to help understand what's happening to me. I think it saved me many trips to the doctors and specialists over the course of months just to have them stumped and have a hole in my wallet. I have been taking Benadryl at night before bed because that's when it seems to get worst and rolling around in bed makes me break out. Can't tell if it is actually helping though. I have seen other threads where others said it is still going on after several weeks. I am an extremely active and healthy 35 year old and was wondering if a booster was even necessary since I could still be protected from the first 2 doses. Perhaps the booster put my system into overdrive? Perhaps some kind of titers could have been done to determine if it was necessary? Maybe I should intentionally get covid to give my body something else to attack. (Don't worry, I'm not going to do that.) This condition or any long term condition weren't listed on the potential side effects. If I had been informed, I could have weighed the risks vs benefits. I really hope they start informing people of these potential long term reactions. I'm definitely not getting any more boosters. Good luck to all of you!

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I am so happy that I found this board! I received the Moderna booster on 12/1 and on 12/13, I broke out in full body hives. Intense itching everywhere, but especially the palms of my hands and feet. My PCP prescribed prednisone, which did nothing. The allergist said there were 400+ anecdotal cases of this and prescribed Zyzal and Pepcid. I’ve been taking one Zyzal every 48 hours, but the hives come back at almost exactly the 48 hour mark every time. I also have dermatographia! Per other comments, I have Hashimoto’s and at least when younger, was allergic to formaldehyde (basically, the chemicals that used to be in nail polish). My face would swell, ears red and hot and someone else mentioned. That was the only allergic reaction I ever had until now. I’m so curious if there is a connection!

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Hi everyone, I feel so lucky to have found this thread. I'm sorry to everyone going through this! The itchiness started in my scalp on Dec 3rd, 11 days after I received the Moderna booster. Followed by hives on my eyes, red/hot ears and dermatographia. I went to urgent care and got steroids and Hydroxyzine. That day a pink circle formed around my eye and my entire chest, it was scary. I started feeling intense chest pain (unlike many of you, my throat wasn't closing) that would wake me up. One night it was so bad I went to the ER and was told I likely had acid reflux. I was later told by my primary care doctor that it's possible this is an immune reaction to the booster shot, he said the chest pain could potentially be lung spasms, so he gave me an Albuterol inhaler. He started me on a Zyrtec/Allegra/Pepcid combo. The chest pain became much less severe and went away after a week and a half. I ended up getting Covid and only having cold-like symptoms with no new allergic reactions. The itchiness and dermatographia continues... the itchiness is the hardest part. Looking forward to keeping up with everyone here.

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Also, the Facebook group mentioned in the Curious article comment section (can't post links yet) has a TON of members with the same issue

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I received my vaccine on. Dec 15 and 11 days later I had hives and now dermatographia. Been in antihistamines prescribed. In Ontario Canada. So glad i found this page. I have no other conditions. Thank you for all your comments

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Identical symptoms minus the esophagus and bowel issues just about two weeks after my moderna booster

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@stevematrix

The exactly same thing happened to me, just as you described, a week after my Moderna booster, I am currently taking 3 different antihistamines and I am on my 7 day of Prednisone, these help with the itching but I cannot scratch my skin, even slight pressure will make it red. My doctor wants me to see and allergist but I feel like I need to see and dermatology first. I will keep you posted. Best regards

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Identical symptoms with my skin about two weeks after my Moderna booster

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11 days after the Moderna booster my hands started itching and hives spread almost all over my body. My palms got so bad I went to the ER. Antihistamines and steroids took care of the swelling and decreased the itching but any pressure or scratch of the skin results in a very precise reaction. No changes in diet, products, external stress, or medications have been identified.

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@anac

I got my Moderna booster on November 15 and on Thanksgiving day (10 days later) my hands were very red and itchy. At first I thought it was due to hand washing too many dishes and I put on some lotion. Then I thought that I grabbed the handles of the rowing machine too hard. But, when I put on my pajamas, I noticed the marks in multiple areas of my body, where the fabric touched the skin. The issue persisted the following day and I went to urgent care. The doctor's notes read "Treating for coverage of hives. Concern you may have dermatographia". She prescribed famotidine (Pepcid 20 mg 1 tablet 2 times a day for 14 days) and predniSONE 20 mg 2 tablets every day for 5 days. Three days later I started feeling my throat closing and that scared me. I went to bed and woke up at 2:30 AM feeling it was getting worst. I tried to stay calm but at 5:00 AM I woke up my husband and told him I may need to go to the emergency room. I called my doctor and asked how I should proceed. The doctor did not want me to go to the ER, he told me since I was able to swallow water, to wait until they open the office and I could be seen. Had a throat coat tea and a few hours later my throat open up completely. My doctor told me to continue taking the medication I was prescribed and if the symptoms continue after 3 days to call her. The dermatographia continue and she got me an appointment with a dermatologist for the next day. I had tried to get an appointment but for a new patient I had to wait until 2/14/2022! The dermatologist diagnosed me with acute urticaria. Put me on 2 tabs Allegra 180 mg in the morning, 2 in the afternoon. Since I have been sleeping poorly, he also prescribed Hydroxyzine 25 mg 1-2 tabs at bedtime. A month later, I continue with the skin symptoms and have an appointment to see the dermatologist again in late January. I bought some gloves to use my rowing machine and have to use clothing that doesn't rub against my skin. I filed a report with the CDC regarding adverse reaction at vaers.hhs.gov. While this is not ideal, I am not trying to discourage anyone from taking the vaccine. I rather deal with this than being connected to a ventilator.

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This was so helpful to read. I have been experiencing all of this (most recently throat tightening feeling). It’s very anxiety inducing but it’s so helpful to read other’s experiences.

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