New alarming symptoms

That is exactly what my fibromyalgia has been for 40 years. I was living in the foothills and was told it was triggered by barometric pressure changes. I have not had any relief and don't know what people mean by flares. My pain now feels like it has moved into my shin bones. I am not able to take fibromyalgia medication and so rely on pain medication, 1 tylenol 3 - 4 times a day. I know if I've missed taking it about 2 hours later when the pain gets still much worse. I am sorry for you.

Are you diabetic? If not, try glucosamine chondroitin. It’s benign and helps build cartilage and lubricate your joints. Unfortunately, it’s been tied to an increase in blood sugar (not a lot of studies on this yet), so if you’re diabetic, talk to your doctor first.
I’ve had fibromyalgia around 44 years (when I was 19) but wasn’t diagnosed until I was in my 30’s. Every doctor told me it was: In my head. Muscle cramps. Overextension. Not enough exercise. Too much exercise. In my head. (Yes, I meant to say that twice.)
I use ibuprofen, CBD (no THC for me), rubs (CBD mixed with arnica & campho - and a few other things, and massage when I can afford it. A friend makes his own naturopathic ointments). I can’t - or shouldn’t - take acetaminophen because I take a medication that’s absorbed thru my liver. (Which already has affected my cholesterol.)
I will admit that I’m better when I do light exercise and stretching but it’s been rough lately with my emotional state. I’m working on that.
Do research. Ask questions. See a naturopath, if possible. But be careful. I was told to take certain herbal remedies for my menopause several years back and they’re all contraindicated with my carbamazepine. Don’t take everything in face value.
Knowing that I have has helped. It has gotten worse as I get older but that’s (possibly) because I’m not as active plus I now have some osteoarthritis and sciatica.
Getting enough quality sleep is imperative. If you don’t like or can’t take sleeping pills or muscle relaxants, try 1/2 a Benadryl a couple hours before bed some nights.
I don’t know if any of this helps. Sometimes just knowing that other people understand and hearing what we - others - do is enough to give us some direction.
🙏🏻

I have taken glucosamine for at least 30 years - 750mmg X3 per day plus calcium, b12, omega 3. My blood work is checked regularly to be sure what I need.

The first physician that told me about glucosamine said you don’t have to take it 3 times a day like it says on the bottle. One dose per day of 1500 mg is enough. They’re just trying to get you to buy more.

It sounds to me as though you have Orthostatic Intolerance, perhaps the subset Postural Orthstatic Tachycardia Syndrome (both capitalized as their proper diagnostic terms). It's one of those co-occuring conditions with fibro. I've had fibro for decades, and developed POTS about a decade ago. In brief and lay-speak, for unknown reasons the muscles in your legs stop constricting when you're upright, so the blood pools there, your heart beats harder and faster to try to get enough blood to your brain, you get dizzy and may fall or faint. If this sounds like what you're experiencing, check your heart rate when you stand (or even sit, sometimes), maybe take your blood pressure. Your doctor should be able to perform this simple test in the office for an actual diagnosis--having you lie down for several minutes, then, with blood pressure cuff and heart rate monitor, have you stand quickly. Within about five minutes OI will become obvious. Weight loss is dramatic, since you're burning a lot of calories just in trying to function.

Things that helped: compression/support hose, high compression (does what your muscles aren't doing); at least knee high, but thigh high, even Spanx or other compression garments, can be helpful, especially for times when you anticipate having to be up and about. D-ribose, I don't know why, but it generally seems to help combat fatigue; the doctor who was treating me recommended it highly. Rest, and remaining as close to lying down as much as you can.

My condition spontaneously cleared, perhaps following oral surgery that eliminated chronic infection? Fortunately because the doctor who had been treating me was forced into retirement, and no one else in his cardiology practice wanted anything to do with OI patients. I've not been active in the POTS sort-of community since, and that was several years ago. I'm sure there's more and better support out there, but finding a doc who understands these conditions can be challenging. Meanwhile, IF you fit what I've described, this may be enough to get you started. Good luck!

Thank You! I have a young aka 29 born with congenital heart disease. A meth addict trying to come clean. Rehab centers are not cheap with insurance first one 25,000 dollars all three rehabs did not help. None of this was explained to us as parents of a disabled adult. He is bipolar and born blue due to lack of oxygen.
So he also has a diagnosis of encephalopathy Aka brain damage.
Rehab facilities are a waste of money all they did was teach him about other drugs. He tried cocaine and lsd as soon as he got out of rehab. His latest has cost me 7,500 in legal fees just marijuana in Texas. I am ready to move to a state where it’s legal.

I'm so sorry to hear this Artemis. What a difficult situation. I feel for your boy and you as well. I don't know what his doctors say, but yeah, it sounds like rehabs aren't the answer.
I'm sure you've already seen neurologists, right?

Cannibis is legal here in Maine, but I don't know if it would help. Wish I could offer more. Narcotics Anonymous saved my life. It focuses on abstinence from all drugs.

I will say a prayer for you and your son, and hopefully relief will come soon.

Best,

Vicki