Spinal cord stimulation: Will Nevro help when Medtronic didn't?

Posted by 24swart @24swart, May 30, 2020

Hi there,

Need your input.
I am 53 and suffer badly from chronic back and nerve pain in my feet, calf, etc. spinal stenosis, arthritis and severe disc degeneration. Basically need new spine with better cartidge. I have had 3 spinal fusions - 2005, 2011 and 2019 (L3-S1 & C5 - C7). Now issues with bone spurs pressing on sciatic nerve and continued disc generation and vertebrae movement above L3. No neuropathy thankfully.

Tried Medtronic trial did not work. Headed to my Dr on 6/2 in Boston to meet him and the Nevro rep. So badly need relief “gabapentin” not doing it. Please share if you could your results on Nevro. I am at a loss as my Dr does not want to do surgery as its very complicated last resort. My posture is terrible as well.

Thank you, very much appreciated.
Andrea

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Hello. I had a Nevro SCS device implanted this past 10/12/2020. I had fantastic relief results while wearing the trial for a week. Right now Nevro & I are slowly adjusting the "signals". Initially I thought that the higher you turned it up, the more pain relief. But that's not true - it sends pain relief in different patterns i.e. the trial unit was set at 360 degrees so I felt relief almost instantly. The permanent device is much more focused, so it takes a bit of time to find your own perfect setting. We are still working on that, but it's moving in the right direction.

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@genomacc

I have been dealing with back issues for 20 years: Chasing relief! The numbness started in about 2005 after disk surgeries L3-S1. In about 2014 the Neuropathy really started to kick in bad. I get sick over anti depressants, and have been the route of opioids which gave me relief, but only a small amount, and I feel at a high cost.
2017 I tried the Medtronic Spinal Stimulator. Had to have the leads removed before I could leave the hospital as I could not control my legs. (I hear now that the leads may have gone into the spinal canal, and not the Intrathecal canal).
Later that year I had a Medtronic Intrathecal Drug pump installed. I do get relief, but not much even after the Doctors have turn up the medication to high.
This year, 2020, I had a trial of the Nevro Spinal Stimulator. Worked great. I'm having to wait for the virus issue to end so I can have it install. I'm so ready!
The Doctor was not able to get the Medtronic leads into the correct level on my lumbar so he went up to T12 and went down to L3, because of the scar tissue. Bad results. The Nevro leads go T12 up to T8. For me it was doable. In addition, the Nevro is on a higher wave length. Worked well for me in the trial of one week.
I had to give up work at the end of 2018 and am now just hoping for relief/quality of life. I'm hoping the Nevro will work for a long time as it did with the trial. Good luck!
(Demographics: Male, age 60)

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to Genomacc - I have the Nevro SCS installed and it's working wonderfully. We are still adjusting it. I have other situations also, but one is scoliosis, both side to side and back to front. The pain clinic where I had the trial unit installed couldn't get both leads in so I only had one. The neurosurgeon chose a different area and was able to get both leads in. female, 63

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@lifetimepain

to Genomacc - I have the Nevro SCS installed and it's working wonderfully. We are still adjusting it. I have other situations also, but one is scoliosis, both side to side and back to front. The pain clinic where I had the trial unit installed couldn't get both leads in so I only had one. The neurosurgeon chose a different area and was able to get both leads in. female, 63

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Thank you so much! I am outside my new doctors office as I write this, so I'm excited to speak with him regarding this.
I just moved from CA to TX, so new doctor, and new state laws.
Thank you again for your input.

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@genomacc

I hope the best for your outcome. I am not close to a Mayo location, however I'm not working now and only have health insurance in San Diego county, in California. I recently changed Insurance companies and currently I am very happy with my care. I'm waiting for non-emergency surgeries to be allowed again. I'll be having the Nevro spinal stimulator installed. I'm not a good candidate for fusion. The prior scar tissue is a problem now. Let's just keep pushing on!

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@genomacc Hello there I was reading about you waiting to get a Neuvro HF10 SCS. Im sure it will help better than most pills have ever been prescribed for nerve pain & DDD & various spinal chronic pain issue's. I know because I have similar issue's & so does my husband. He is getting his on Dec 21st, 2020. Its going to be done partially in his thoracic & low to mid lumbar region in a paddle style position. Kind of like a spread out fingers style position. He did the trial & loved it!!! It worked for him better than any of his pain meds ever did. He was singing on his 2nd day of the trial & by the 4th day he was playing his guitar. I was so happy to see him smile & tell me for the 1st time in over 12years his feet & legs were not burning/tingling from nerve pain. I was so happy for him & now this month has been a bit of a struggle for me as I need Neurosurgery on my cervical spine. & had an epidural injection that helped my nerve pain in my left butt cheek. It worked.
I did a lot of research on which SCS unit to pick for my Husband & most of the info that swayed me towards this Neuvro HF10 SCS was reading posts written here in Mayo Clinic Connect, I thank you all & It may end up I myself could get a unit as well. I especially like the fact that there is no parethesia.
No jolts of machine turning on.
Neuvro SCS is good for 12yrs of wear before it needs to be taken out & replaced. Best of all you can get an MRI with this unit. We checked 3 different MRI clinic's & they are the only ones that are approved for MRI's. Also who knows what else they will come out within the next 12 yrs before it is time to be removed.
I wish all well & be strong. Im in pain tonite myself my cervical & thoracic spine is badly herniated & my discs are pushing into my spinal column & its scary but Im hopeful something will get better & I pray I will not need a fusion, instead hopefully I can get a Neuvro myself.
Life is ever changing. Even certain chronic pain issue's change with time. Be strong & never say this is my last choice, because it always changes. Be safe & good nite. Maybe now my body will let me sleep a few hrs. Happy Holidays to all. Mimi

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Hello. I have severe chronic nerve pain due to a failed back surgery from 11 years ago. After spending 8 "lost" years on morphine and hydrocodone, I graduated from Mayo's 3-week pain rehabilitation program. That, without doubt, was the best decision I've made regarding managing my chronic pain. Now the only medication I take for pain is Lyrica. The pain is still here every day and often it's bad.

I continue to look for "solutions" that will relieve more of the pain. I no longer expect to find a magic bullet, but only to reduce the pain incrementally by a combination of several things: Lyrica, chiropractor, physical therapy, gentle yoga, etc.

Last August I did back-to-back trials of 2 spinal cord stimulators: Nevro's HF10 followed by Boston Scientific. The Nevro HF10 trial was a bust. It really didn't help at all. The Boston Scientific trial was done immediately after Nevro's and was done with the Nevro leads still in place The Boston Scientific trial provided some relief but I really couldn't say it improved my pain by 50% so I chose to not have it implanted at that time.

I am now going to repeat the Boston Scientific trial with their leads. I don't know if this will make a difference and will produce better results but I'll soon find out.

Before I had the 2 trials last August, I did a lot of research and selected Nevro's HF10 first, in part because of discussions on this Mayo Clinic site. The message I hope to share with readers is this: be hopeful but don't be disappointed if the results of any SCS trial are less than hoped for. The truth is, there are some patients who are not helped by SCS. I wish everyone who is trialing a SCS the best of luck and good success.

REPLY
@msstoppainnagginme

@genomacc Hello there I was reading about you waiting to get a Neuvro HF10 SCS. Im sure it will help better than most pills have ever been prescribed for nerve pain & DDD & various spinal chronic pain issue's. I know because I have similar issue's & so does my husband. He is getting his on Dec 21st, 2020. Its going to be done partially in his thoracic & low to mid lumbar region in a paddle style position. Kind of like a spread out fingers style position. He did the trial & loved it!!! It worked for him better than any of his pain meds ever did. He was singing on his 2nd day of the trial & by the 4th day he was playing his guitar. I was so happy to see him smile & tell me for the 1st time in over 12years his feet & legs were not burning/tingling from nerve pain. I was so happy for him & now this month has been a bit of a struggle for me as I need Neurosurgery on my cervical spine. & had an epidural injection that helped my nerve pain in my left butt cheek. It worked.
I did a lot of research on which SCS unit to pick for my Husband & most of the info that swayed me towards this Neuvro HF10 SCS was reading posts written here in Mayo Clinic Connect, I thank you all & It may end up I myself could get a unit as well. I especially like the fact that there is no parethesia.
No jolts of machine turning on.
Neuvro SCS is good for 12yrs of wear before it needs to be taken out & replaced. Best of all you can get an MRI with this unit. We checked 3 different MRI clinic's & they are the only ones that are approved for MRI's. Also who knows what else they will come out within the next 12 yrs before it is time to be removed.
I wish all well & be strong. Im in pain tonite myself my cervical & thoracic spine is badly herniated & my discs are pushing into my spinal column & its scary but Im hopeful something will get better & I pray I will not need a fusion, instead hopefully I can get a Neuvro myself.
Life is ever changing. Even certain chronic pain issue's change with time. Be strong & never say this is my last choice, because it always changes. Be safe & good nite. Maybe now my body will let me sleep a few hrs. Happy Holidays to all. Mimi

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The Doctor I just saw has agreed to work with. I relocate to central Texas. I was concerned about finding a doctor who will fill my current Medtrontic drug pump given that when I moned from Idaho to San Diego, California it was difficult to find a doctor to fill an existing pump.
The issue is that this new Doctor does not use Nevro. He is going to discuss this issue with the other doctors at the clinic and see where I stand.
I like this Doctor, but I had good results with the Nevro trial, so time will tell.
Good luck everyone!

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@elsa

Hello. I have severe chronic nerve pain due to a failed back surgery from 11 years ago. After spending 8 "lost" years on morphine and hydrocodone, I graduated from Mayo's 3-week pain rehabilitation program. That, without doubt, was the best decision I've made regarding managing my chronic pain. Now the only medication I take for pain is Lyrica. The pain is still here every day and often it's bad.

I continue to look for "solutions" that will relieve more of the pain. I no longer expect to find a magic bullet, but only to reduce the pain incrementally by a combination of several things: Lyrica, chiropractor, physical therapy, gentle yoga, etc.

Last August I did back-to-back trials of 2 spinal cord stimulators: Nevro's HF10 followed by Boston Scientific. The Nevro HF10 trial was a bust. It really didn't help at all. The Boston Scientific trial was done immediately after Nevro's and was done with the Nevro leads still in place The Boston Scientific trial provided some relief but I really couldn't say it improved my pain by 50% so I chose to not have it implanted at that time.

I am now going to repeat the Boston Scientific trial with their leads. I don't know if this will make a difference and will produce better results but I'll soon find out.

Before I had the 2 trials last August, I did a lot of research and selected Nevro's HF10 first, in part because of discussions on this Mayo Clinic site. The message I hope to share with readers is this: be hopeful but don't be disappointed if the results of any SCS trial are less than hoped for. The truth is, there are some patients who are not helped by SCS. I wish everyone who is trialing a SCS the best of luck and good success.

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Sorry you are dealing with this issue. Only people who have had bad back pain can truly understand. Hoping you find some improvement! My Medtronics one works nicely for me most of the time. I find if I stay active, my leg pain is much better, but if I don’t walk regularly, then I may have some discomfort, even with the stimulator.

REPLY
@msstoppainnagginme

@genomacc Hello there I was reading about you waiting to get a Neuvro HF10 SCS. Im sure it will help better than most pills have ever been prescribed for nerve pain & DDD & various spinal chronic pain issue's. I know because I have similar issue's & so does my husband. He is getting his on Dec 21st, 2020. Its going to be done partially in his thoracic & low to mid lumbar region in a paddle style position. Kind of like a spread out fingers style position. He did the trial & loved it!!! It worked for him better than any of his pain meds ever did. He was singing on his 2nd day of the trial & by the 4th day he was playing his guitar. I was so happy to see him smile & tell me for the 1st time in over 12years his feet & legs were not burning/tingling from nerve pain. I was so happy for him & now this month has been a bit of a struggle for me as I need Neurosurgery on my cervical spine. & had an epidural injection that helped my nerve pain in my left butt cheek. It worked.
I did a lot of research on which SCS unit to pick for my Husband & most of the info that swayed me towards this Neuvro HF10 SCS was reading posts written here in Mayo Clinic Connect, I thank you all & It may end up I myself could get a unit as well. I especially like the fact that there is no parethesia.
No jolts of machine turning on.
Neuvro SCS is good for 12yrs of wear before it needs to be taken out & replaced. Best of all you can get an MRI with this unit. We checked 3 different MRI clinic's & they are the only ones that are approved for MRI's. Also who knows what else they will come out within the next 12 yrs before it is time to be removed.
I wish all well & be strong. Im in pain tonite myself my cervical & thoracic spine is badly herniated & my discs are pushing into my spinal column & its scary but Im hopeful something will get better & I pray I will not need a fusion, instead hopefully I can get a Neuvro myself.
Life is ever changing. Even certain chronic pain issue's change with time. Be strong & never say this is my last choice, because it always changes. Be safe & good nite. Maybe now my body will let me sleep a few hrs. Happy Holidays to all. Mimi

Jump to this post

That’s wonderful that it helped him so much! I know mine (Medtronics) made a big difference.

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Yes! I have the Nevro implant and it is working wonderfully. I am still making fine adjustments, it was installed on 10/12/2020. The Nevro rep is just a phone call away and they are very helpful. During the trial period of 5 days I had 80-85% less pain. Now with the permanent implant I have about 50% less pain but like I said we are still making adjustments. I don't need any pain meds anymore, thank God. The future is looking up!

REPLY
@elsa

Hello. I have severe chronic nerve pain due to a failed back surgery from 11 years ago. After spending 8 "lost" years on morphine and hydrocodone, I graduated from Mayo's 3-week pain rehabilitation program. That, without doubt, was the best decision I've made regarding managing my chronic pain. Now the only medication I take for pain is Lyrica. The pain is still here every day and often it's bad.

I continue to look for "solutions" that will relieve more of the pain. I no longer expect to find a magic bullet, but only to reduce the pain incrementally by a combination of several things: Lyrica, chiropractor, physical therapy, gentle yoga, etc.

Last August I did back-to-back trials of 2 spinal cord stimulators: Nevro's HF10 followed by Boston Scientific. The Nevro HF10 trial was a bust. It really didn't help at all. The Boston Scientific trial was done immediately after Nevro's and was done with the Nevro leads still in place The Boston Scientific trial provided some relief but I really couldn't say it improved my pain by 50% so I chose to not have it implanted at that time.

I am now going to repeat the Boston Scientific trial with their leads. I don't know if this will make a difference and will produce better results but I'll soon find out.

Before I had the 2 trials last August, I did a lot of research and selected Nevro's HF10 first, in part because of discussions on this Mayo Clinic site. The message I hope to share with readers is this: be hopeful but don't be disappointed if the results of any SCS trial are less than hoped for. The truth is, there are some patients who are not helped by SCS. I wish everyone who is trialing a SCS the best of luck and good success.

Jump to this post

@elsa Dear I hope your trial goes well with SCS. Also I hope it's a different Dr that is doing your trial. Also I want to point out some Dr's do not know how to hook it in a proper way to your back.
I'm glad to hear that you are in less pain from Lyrica/pregablin help your pain. Some of us unfortunately do not respond well from those types of medications Lyrica is made specifically for Diabetic Neuropathy & Neurontin/Gabapentin is made for seizures. Yet both medications are prescribed for nerve pain aka Neuropathy. However if it helps you that's a plus for you.
I wish you all the best be strong & know that there are people who care enough to say good luck & stay as positive as u can be. Good luck & let us know of your outcome
Mimi.

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