Has anyone tried the Calmare therapy treatments. This is done at a neurologist's office and not covered by insurance. I am thinking about trying it. It's a big tens unit that is suppose to take pain signals awy from your body.
I have been diagnosed with neuropathy on my legs, feet, and hands. I’m on medication but still in pain. I have tried many treatments but they have not helped so I’m looking for other options.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
Another great source of information if you haven't already discovered it, is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/.
Have you been diagnosed with neuropathy? Do you mind sharing a little more about your diagnosis and treatments?
Here is an earlier discussion about it. https://connect.mayoclinic.org/discussion/pronerve6/
Here are some "SCAM" signs:
Quantities of the specific ingredients, it is impossible to tell what you are buying.
Every link leads to a glowing review - that's just not possible in the real world.
Most of the product is sold "exclusively through their website"
Their products on Amazon & Walmart do not include a true list of the advertised ingredients
There are no research studies or independent reviews
Here is an earlier discussion about it. https://connect.mayoclinic.org/discussion/pronerve6/
Here are some "SCAM" signs:
Quantities of the specific ingredients, it is impossible to tell what you are buying.
Every link leads to a glowing review - that's just not possible in the real world.
Most of the product is sold "exclusively through their website"
Their products on Amazon & Walmart do not include a true list of the advertised ingredients
There are no research studies or independent reviews
Thank you for your reply. Based on it, and my further searches, I've skipped buying any of the products. There's a wealth of information on this site and I think I'll stay with that.
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
@apexapril
There is no cure for neuropathy yet new treatments/cures are constantly coming on to the market. I would think that alone would be a clue.
I accept neuropathy for what it is an incurable illness and refuse to waste a bunch of money on products that probably won't work anyway. Sometimes you just have to accept things as they are. I have messaged people who take all sorts of vitamins and minerals, and whatever else and asked them if they helped and few reply positively. Good luck to you.
Take care,
Leonard
@apexapril
There is no cure for neuropathy yet new treatments/cures are constantly coming on to the market. I would think that alone would be a clue.
I accept neuropathy for what it is an incurable illness and refuse to waste a bunch of money on products that probably won't work anyway. Sometimes you just have to accept things as they are. I have messaged people who take all sorts of vitamins and minerals, and whatever else and asked them if they helped and few reply positively. Good luck to you.
Take care,
Leonard
Thank you for your post Leonard. I incurred the neuropathy after three bouts of Covid and broken ankle. My right ankle, my hands, and lower back are constantly on fire to the point of having very little feeling and constant pain.
I currently take morphine every day, and it helps somewhat, but I hate the addiction. Fortunately, I'm 76 and will probably die fairly soon, and I'll be shut of the whole mess.
My pain doctor recommended 200 mg of alpha lipoic acid three times a day for the neuropathic pain. ALA is widely used in Europe for that purpose. A clinical trial found ALA was as effective as gabapentin in relieving the pain. There is also evidence that ALA may help to heal peripheral nerves. I believe this supplement does reduce my pain. It can cause heartburn. I'm careful to sit upright for about an hour after I take it.
I've tried ALA as well, but feel nauseous every time I take the pill, then followed by that heartburn feeling you mention.
I wonder if there's a supplement that has no taste, and is somehow buffered?
I think the brand i was using is NOW.
Connect
Connect
Like
Helpful
Hug
What do they do at this clinic?
Welcome @debbiehirsch, There are several discussions and quite a few members who have shared their experience with Calmare therapy. Here's a link to the discussions and comments if you want to scan through them - https://connect.mayoclinic.org/search/discussions/?search=Calmare%20therapy.
Have you been diagnosed with neuropathy?
I have been diagnosed with neuropathy on my legs, feet, and hands. I’m on medication but still in pain. I have tried many treatments but they have not helped so I’m looking for other options.
-
Like -
Helpful -
Hug
1 ReactionIs anyone familiar with Pronerve6 for relief from neuropathy? If so, what were your results?
Welcome @apex, There is another discussion on the product that you might want to view here - ProNerve6: https://connect.mayoclinic.org/discussion/pronerve6/. There are also many different discussions on what helps neuropathy that you might want to scan through. Here's a link that lists discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=what%20helps%20small%20fiber%20neuropathy.
Another great source of information if you haven't already discovered it, is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/.
Have you been diagnosed with neuropathy? Do you mind sharing a little more about your diagnosis and treatments?
-
Like -
Helpful -
Hug
2 ReactionsHere is an earlier discussion about it.
https://connect.mayoclinic.org/discussion/pronerve6/
Here are some "SCAM" signs:
Quantities of the specific ingredients, it is impossible to tell what you are buying.
Every link leads to a glowing review - that's just not possible in the real world.
Most of the product is sold "exclusively through their website"
Their products on Amazon & Walmart do not include a true list of the advertised ingredients
There are no research studies or independent reviews
I would call the a 5 on the Scam Alert scale.
-
Like -
Helpful -
Hug
4 ReactionsThank you for your reply. Based on it, and my further searches, I've skipped buying any of the products. There's a wealth of information on this site and I think I'll stay with that.
Thanks for your response!
-
Like -
Helpful -
Hug
6 Reactions@apexapril
There is no cure for neuropathy yet new treatments/cures are constantly coming on to the market. I would think that alone would be a clue.
I accept neuropathy for what it is an incurable illness and refuse to waste a bunch of money on products that probably won't work anyway. Sometimes you just have to accept things as they are. I have messaged people who take all sorts of vitamins and minerals, and whatever else and asked them if they helped and few reply positively. Good luck to you.
Take care,
Leonard
-
Like -
Helpful -
Hug
3 ReactionsThank you for your post Leonard. I incurred the neuropathy after three bouts of Covid and broken ankle. My right ankle, my hands, and lower back are constantly on fire to the point of having very little feeling and constant pain.
I currently take morphine every day, and it helps somewhat, but I hate the addiction. Fortunately, I'm 76 and will probably die fairly soon, and I'll be shut of the whole mess.
Again, thanks for your thoughts!
-
Like -
Helpful -
Hug
2 ReactionsI've tried ALA as well, but feel nauseous every time I take the pill, then followed by that heartburn feeling you mention.
I wonder if there's a supplement that has no taste, and is somehow buffered?
I think the brand i was using is NOW.
-
Like -
Helpful -
Hug
2 Reactions