1. < Pancreatic Cancer

Neuropathy in feet after completing Chemotherapy

Posted by kjc12 @kjc12, Jan 3 7:16pm

My husband completed 10 rounds of Folfirinox at the end of September. In late October he developed neuropathy in both feet. It is getting progressively worse. We are meeting our Oncologist next week to go over bloodwork and CT-scan scheduled for this Friday. Has anyone else had this happen afterwards and if so, what supplements, treatments have helped. Thanks for all your help once again.

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gardenlady1116 | @gardenlady1116 | Feb 4 9:11pm
In reply to @cancerback "I also had this happen. I completed 6 infusions of Tivdak and in the three weeks..." + (show)
@cancerback

I also had this happen. I completed 6 infusions of Tivdak and in the three weeks following, my neuropathy got much worse. In the 10 months since then, it has not improved. I went to a physical therapist to learn exercises to help my balance and the numb feeling in my feet. I am going to restart the Tivdak soon and I am very worried about how much worse it will get.

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My neuropathy also got worse after stopping, I think at about 3-4 months seemed to level off, but not better. Physical therapy for balance exercise has been helpful. Make sure you tell your doctor how you are doing.

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henfayp | @henfayp | Feb 5 1:12pm

Anyone tried EMS food massager? Does it work?

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kjc12 | @kjc12 | Feb 6 7:33pm

I purchased the Miko heated foot massager for my husband from our local Walmart. He feels it has helped his neuropathy greatly. Uses it a couple times a day. Things have greatly improved. I hope you find relief soon.

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kjc12 | @kjc12 | Feb 6 7:38pm
In reply to @cancerback "I also had this happen. I completed 6 infusions of Tivdak and in the three weeks..." + (show)
@cancerback

I also had this happen. I completed 6 infusions of Tivdak and in the three weeks following, my neuropathy got much worse. In the 10 months since then, it has not improved. I went to a physical therapist to learn exercises to help my balance and the numb feeling in my feet. I am going to restart the Tivdak soon and I am very worried about how much worse it will get.

Jump to this post

My husband has been using the Milo’s foot massager and it has really helped. He has also started Acupuncture and it seems to be helping his neuropathy as well as stomach issues from Whipple surgery and chemo. He’ll go for his 3rd visit this week. Will post updates. Wishing you well in this long journey.

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