NET - Insulinoma
Hello to All,
I am joining this group from the Diabetes/Endocrine group. In July 2015 I was diagnosed with 2 insulinomas - both removed surgically at DUMC in NC. The diagnostic work-up included a 5 day hospital stay (72 hour fast + complications) and the surgery was an 11 day hospital stay (typical stay for a Whipple procedure). About 3 months post surgery, I started having recurrent hypoglycemia symptoms very similar to my pre-op symptoms. Insulinomas are very difficult to diagnose and locate and so far they have not been able to locate a new tumor but do suspect there is regrowth of an old tumor or growth of a new one. That is what will bring me to Mayo next week. Anyone been through insulinoma testing at Mayo? Hopeful to be starting down a path to possibly find a resolution of daily hypoglycemia symptoms but nervous because I have walked down this path once already. Glad to see the new group on NETs. Thanks.
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
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I have asked Dr. Shah about the MEN type 1 gene mutation. I had a parathyroid tumor removal in 2012. My maternal grandmother died of stomach cancer at 54 and I’m 53. My mother has passed also and I’m certain neither knew if they had it. I have mimicked my grandmothers health troubles throughout her life. I figured smoking caused her issues. I never gave any of this a second thought until my daily hypo started a month ago.
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