Is anyone feeling any sharp stabbing nerve pain related to COVID?

I had this pain with acute Covid and it felt like shooting pain in legs and arms. Now my legs and arms are very fatigued. I’m going to dr this week to get referral for our long covid clinic in my city to see if that will help.

Lost the ability to walk for many months after Covid 10/20. It’s been a long route to recovery. Looking to get Evusheld for protection from Covid and avoid further Myletis. I can’t seem to speak with someone about doing this ASAP.

I really don’t think you have shingles. That would show a rash etc. many post acute Covid folks have nerve pains as I’m learning more. I definitely think you should ask to see a specialist as your doctor just might not be aware of post acute Covid issues. I’m discovering most doctors are not and specialists and long Covid clinics seem to be helping the most.

Thank you all so much!

I will say after covid actually weeks before I got covid it started but then when I got it and now it's 6 months later I have severe severe nerve pain in my arm, ear, back of neck. So far no medications has helped I actually think gabapentin has made it worse

Interesting. Someone just recommended gabapentin but I am reluctant to try. I’m hearing more and more about the micro clots in legs that could be related. I’m going to start wearing compression socks during day while I work at home.

I did Allegra to block H1 for two weeks and it helped, but I stopped bc felt better and then had this itchy withdrawal on skin so I’m hesitant to start up again, but I hadn’t tried Pepcid ac to block H2. I heard that helps calm leg pain together to stop histamine issue which creates the issue. I’m already on low histamine diet so will continue that. It did help but I got off for vacation and pains in legs came back. Here is a article that helps provide context: https://www.livescience.com/antihistamines-to-treat-long-covid-pasc

NIH also did study. Low histamine isn’t well researched yet for long Covid but does seem to be increasingly referenced:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7336703/
If you google microclots team and South Africa study there is a company (I posted it in the discussion group under a micro clot test discussion) that has more info.
https://thehill.com/changing-america/well-being/medical-advances/588443-south-african-scientist-thinks-she-may-have/amp/
https://www.npr.org/2022/01/09/1071706533/the-role-of-tiny-blood-clots-in-long-covid
https://sciencenews.dk/en/some-hope-for-the-100-million-people-with-long-covid
Doug Kell’s paper that I found most helpful as he warns of scams of micro clot tests which do not exist right now:
http://dbkgroup.org/longcovid/
Also there is the South African researcher who is working on west coast with this company:
https://rthm.com/
This company just got fda approval and funding to build micro clot test. But this test requires technology that will take up to four months to build so I’m thinking we won’t as general public get access until early 2023 to see if our leg pain is truly micro clots or not.

Personally, I continue to go back and ask for more tests. I’m getting an MRI for my lower back to see if the tailbone pain is nerve damage related to leg pain. I was referred through my general doctor to an orthopedic specialist and she did X-ray on my back and all was normal and we hope mri may help identify if it’s nerve damage and if not then I will review my cardiologist to see about the options.

I recommend working with your doctor and start making these appointments now. The waiting time is insane and takes forever.

Pain is an unpleasant sensory and emotional experience which is related to potential tissue damage. Clinical manifestations of COVID-19 pain vary from headache, abdominal pain, arthralgia, to myalgia. Muscle pain or myalgia is one of the most frequent symptoms among COVID-19 patients, while neuropathic pain is rarely reported by COVID-19 patients. Patients with pain, particularly neuropathic pain normally do not respond well to various therapies.

Moreover, they often experience psychiatric disturbances at the same time, such as depression, which leads to reduced quality of life of the patients. The purpose of this study is to discuss about pain which is commonly present in COVID-19 patients and its management.

Hello Tiredmommy,
I just joined the Mayo Clinic Connect and this group.
I am so sorry you are dealing with this pain.
I was wondering if you had any updates to provide.
My adult daughter has been experiencing shooting pains in her legs. This is the 2nd time she has had COVID; she did not experience this after the first COVID illness, although she has had other symptoms.
I appreciate any information you can provide. Thank you.

I just got a lumbar MRI this morning and reviewing with my doctor.

I also did sleep study test that can help identify if your oxygen levels fall during sleep and sleep studies automatically do EKG monitoring while you sleep in the sleep study so that was a bonus as my cardiologist wouldn’t do an EKG when I went for office visit.

I started magnesium supplements, multi vitamin, various teas (e.g., ginger, chamomile, peppermint, etc), on low histamine diet (dairy, gluten, alcohol, red meat free), lots of water, low salt, limited processed foods (a few things but very clean eating), and just started wearing compression socks. The socks make my legs feel so much better. I am in shock and makes me believe perhaps my issues aren’t nerve pain but vascular/micro clots that aren’t diagnosed bc there is no micro clot test in the US yet.

I think many of us aren’t really sure if our issue is muscular, nerve or vascular bc the symptoms are similar. We are all trying to work through doctors but research takes time. I have heard anecdotal suggestions of H1 and H2 blockers help (histamine related and referencing doing Pepcid a/c and an allergy med like Zyrtec/Claritin/Benadryl/Allegra). I was on Allegra but then had a skin rash when I stoped, so hesitant to try this again. But that’s something to discuss potentially with your doctor. My doctor hadn’t heard about that.

What I am finding is that most doctors just don’t understand or haven’t researched this topic in as much detail as you or others experiencing post Covid issues have. Others have done b12/d/iron tests, etc. I may do that again to pulse check how my body is doing.

If you can find a doctor or long Covid clinic near you I would continue making appointments and advocating for needs to get referrals. They won’t follow up with you. This is when you need to get your proactive, assertive hat on and push for more blood work tests etc.

Wishing everyone good healing and wellness!

I have elevated risk for blood clots, as well as nerve pain, from Long Covid and the vaccine. I have found relief from taking a natural product to thin the blood called Nattokinase. It’s made from fermented soy beans. Lots of research you can find online to verify its effectiveness. Nice to avoid drug side effects.

I take ALA: alpha lipoic acid, and Lion’s Mane mushroom to address nerve pain and neuropathy. Really helps heal the nerves, which takes time but can happen. Keeping my nervous system as calm as possible has also helped. I use a natural oil called Nerve Pain, by Forces of Nature, to apply topically. It really helps me. CBD oil also amazing.