My mother in law (81 y.o.) went through something nasty, possibly even Covid last December 2019 to January 2021. As a result of that disease her kidneys were damaged and started to shed protein. Eventually she was diagnosed with Nephrotic Syndrome.
The treatment was supposed to be in cycles: 3 months of heavy steroids, 3 months of oral chemo, repeat and so on.
She could not tolerate chemo due to side effects, so her doctor advised to use only steroids. Unfortunately steroids not advised to be used longer than 6 months in a row (by now she is on 8th month). Her doctor says that he can not change the treatment plan and she would have to be on this treatment until the end (and there are so many side effects…).
So, we went to UCLA for second opinion and found out that this steroid/chemo cycle treatment can be phased out in lieu of another treatment involving Prograf and Cellcept.
We would like to get third opinion on this matter.
I am a registered nurse and I know Mayo Clinic through Liver Transplant program (many of my patients in the past got new liver from you, thanks).
What are the options to get second/third opinion in Mayo Clinic? Can it be done remotely, we will send you all the labs, talk on the phone for assessment and your doctors will make suggestions, or we have to physically come for visit?
Can you provide more resources on this matter, where to start, etc?
Really appreciate in advance for any suggestions.