Neobladder Replacement vs. Stoma

Posted by kwagner @kwagner, Sat, Jan 18 1:53pm

My father had his bladder replaced with a neo bladder 19 years ago. His doctor recently found tumors inside his neo bladder and the walls are too thin to use the neo bladder anymore. The only option he was given was to remove the neo bladder and put in a stoma, my father is a bit of neat freak and refuses to have a stoma even if it costs him his life. Are there any other options after you already a neo bladder and out lived it?

My concern about shaving is creating or exacerbating irritation under the wafer. I would call the Stoma Clinic at Mayo, Rochester and ask to consult with one of the nurses before shaving. I think there are quite a few risks involved with this recommendation and would start with the best advice from stoma nurses at Mayo mentioned above.Call general Mayo # and ask for stoma Clinic on Gonda 9.

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I've had a urostomy for now 5+ years. I was given the neobladder option and elected not to have it because of the lack of nerves which necessitated wearing adult diapers, which i refused to do. The ease of having a urostomy are: road trips are easy due to pure volume control; reliability of the adhesionsupplies grows each year; visibility for changing wafer and pouch is readily observed. I would not have any other option.

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@jshollett

I've had a urostomy for now 5+ years. I was given the neobladder option and elected not to have it because of the lack of nerves which necessitated wearing adult diapers, which i refused to do. The ease of having a urostomy are: road trips are easy due to pure volume control; reliability of the adhesionsupplies grows each year; visibility for changing wafer and pouch is readily observed. I would not have any other option.

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@jshollett, welcome to Mayo Clinic Connect. I appreciate hearing about your success and satisfaction in choosing an urostomy 5 years ago. Might you have some tips about preventing pouch leakage for @katydid77?

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