Endometrial cancer: How do I advocate for better care?
Okay, I'm new. 55 year old . So I've always had heavy long periods. Well, last year it was July 2020 and I found myself have breathing problems. So, on July 3rd, I wound up in the ER and on oxygen, getting x-rays, 2 blood transfusions , a lady putting a thing inside my , you know. I was in a whirlwind nightmare! I had been bleeding for a couple weeks with clots shooting out of me that were the size of my hand!! I don't know how I survived losing that much blood everyday all day long. So, they admitted me. For 2or 3 days they took a lot of blood and told me I had a good count of 6 and it's supposed to be 12 or 13! Hence, the two blood transfusions. My red blood cell count that low could have killed me and almost did! So, they then did a vaginal biopsy and that was a bit painful. So, I found out that I have Atypical hyperplasia of the endometrium? Complex I think. Anywho, I was referred to an oncologist?!!! What? I was dumbfounded! So, it turns out that the EAH turned into endometrial cancer!
Every visit I had with the oncologist I always left feeling confused no real answers and wanted to be told exactly what my deal here is!!! I just needed some kind of treatment right? Well didn't and still haven't had the hysterectomy total n radical , with lymph node removal, appendix, ureter release and all organs removed ! It's going on a year and not 1 freaking kind of treatment whatsoever! I could have stage 4 by now from going untreated like this! What's wrong with our healthcare system?? Oh and my insurance says I have to go back to this same oncologist even after there was a grievance filed against her for me! I don't want a someone doing surgery on me that probably has a grudge against me now, WOULD YOU?? PLEASE HELP!