Nefroesclerosis con glomerulos viables y fibrosis intersticial modera

Bienvenidos, @jrcappa15. I moved your question about Nephrosclerosis with viable glomeruli and moderate interstitial fibrosis to the Kidney & Bladder support group where you will meet other members with kidney disease experience like @gingerw @kamama94 @collegeprof @maryj2023 @longtermcaregiver and many others.

How are you doing with the strict diet? What diet restrictions are your following?

It’s my 18 yr old son going thru this. We struggle to prep meals without sodium. We read every label before we purchase food. It’s very hard I hope there is hope for him. It’s very hard on us. They just put him on dialysis right away and is considered chronic. I don’t feel that are doing enough to help treat it.
It’s very sad. I wish I had someone that specializes on that disease help him. He’s so young. Was never sick.

@maryj2023
@jrcappa15

Believe me, I am so sorry for your son going through this at such a young age. My first instinct was for your son to get a 2nd medical opinion. Assuming you have and you are still not satisfied, please find another nephrologist whom he can see often, and can communicate with him/her often with questions? Sodium, potassium, and phosphorus play havoc on the kidneys. @gingerw is one of the best mentors of this forum and is also going through dialysis. @kamama94 offers great advice on healthy eating habits. There may be advancements and trials available for his disease. I have found that Mayo Clinic and other top hospitals offer the best care, research, and educational services to every patient should he live near one of these facilities. Unfortunately, I have not offered any solutions as I am not a Nephrosclerosis patient, but many others are here to support you further.

Espero que encuentres la ayuda que necesita.

Hi
I would like second medical opinion and have been thinking of Mayo Clinic. I don’t know how to get him in there. I live a day drive to one Rochester Minn. I am starting to think the nephrologist here isnt doing as
much to treat it. They did start him on RITUXIMAB and had two infusions already but we don’t know if there is a bit of change or improvement. We ask nurse questions and she inform us that she will talk to the nephrologist. I really need to get my son in somewhere. He has information sessions this week on home hemodialysis and peritoneal dialysis. They also started the process of transplant. This is a lot for us. There must be a treatment he can try.
Sad

Unfortunately, this is a disease where one must be proactive. Your son's disease may demand immediate attention at either Mayo or a major hospital nearby that specializes in this disease. There is hope you will find a more suited nephrologist soon. In the meantime, this is a team effort by your PCP, a dietitian, and others. My CKD team includes the above and I get frequent labs done to make sure things do not get worse. I wish you and your son the best.

@maryj2023 Lamento leer que su hijo tiene esta enfermedad inusual. [I'm sorry to read your son has this unusual disease.] The education classes will be very good for you to go through, and please insist that you also accompany him. There is a lot to learn about how to live with a kidney condition, both for the patient [your son], and the caretaker/support team.

To get an appointment at Mayo Clinic, use this link: http://mayocl.in/1mtmR63 If you are not able to get to Mayo Clinic [they have locations in Arizona, Florida, and Minnesota], there are large teaching hospitals and university hospitals around the country, too. What area do you live in?

Por favor, ¿cómo puedo ayudarte? Please, how may I help you?
Ginger

Hola.

Tengo una dieta bajo en sodio (no más de 2,400mg al día)
Fosforo (no más de 1,500mg)
Potacio (no más de 2,000mg)
Proteinas ( no más de 60g)
No naranja, no aguacate, no coco, no verduras y no comidas preparadas o enlatadas.

Y tomar medicamentos para la presión alterial.

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