Need immediate help. No one can give me a diagnosis....
This is going to be a long post but I'm out of options at this point. I'm in constant pain throughout my body, especially my neck and back.
I will preface this by saying around a year ago I got really really bad food poisoning and ended up with chronic diaharea that still persists till today. I've had stool sample studies and all came back clean but I just want to say this in case it had any resemblance.
One evening June 24th 2022 while sitting on the couch I felt strange and didn't feel normal. I stood up and my leg was numb and tingling but it wouldn't go away. Shortly after it slowed down and I noticed muscle twitching in my right calf. I did the worst possible thing and Googled my symptoms and went down the ALS rabbit hole and no less than a week after I had twitching all over my body, fatigue, etc you name it.
I went to a neurologist in early July and had a clinical with showed the following.
"Visual fields were full.
Funduscopic examination reveals no evidence of optic disc edema or retinal hemorrhages.
Pupils are equal, round, and reactive to light. No ptosis.
Extraocular movements are intact.
There is no facial numbness. Eye closure, cheek puff, jaw closure, jaw opening, and tongue protrusion are full.
Palate raised symmetrically and tongue protruded midline.
There is no hypoacusis to finger rub confrontation.
Sternocleidomastoid and trapezius strength were full.
Neck flexors 5
Neck extensors 5
Shoulder ER: (R): 5 (L): 5
Shoulder IR: (R): 5 (L): 5
Deltoids: (R): 5 (L): 5
Biceps: (R): 5 (L): 5
Triceps: (R): 5 (L): 5
Wrist extensors: (R): 5 (L): 5
Finger extensors: (R): 5 (L): 5
Wrist flexors: (R): 5 (L): 5
Finger flexors/FDP (R): 5 (L): 5
Abductor digiti minimi: (R): 5 (L): 5
First dorsal interosseous: (R): 5 (L): 5
Abductor Pollicis Brevis: (R): 5 (L): 5
Flexor Pollicis Longus: (R): 5 (L): 5
Hip Flexors: (R): 5 (L): 5
Hip abduction: (R): 5 (L): 5
Hip adduction: (R): 5 (L): 5
Quadriceps: (R): 5 (L): 5
Hamstrings: (R): 5 (L): 5
Tibialis anterior: (R): 5 (L): 5
Medial gastrocnemius: (R): 5 (L): 5
Muscle Tone and muscle bulk are normal in the upper and lower extremities. There are no fasciculations.
Biceps: (R): 2+ (L): 2+
Brachioradialis: (R): 2+ (L): 2+
Triceps: (R): 3+ (L): 3+
Hoffman: (R): Present (L): Present
Patellar: (R): 3+ (L): 3+
Achilles: (R): 2+ (L): 2+
Babinski: (R): absent (L): absent"
Basically bilateral brisk reflexes in my knees and triceps. Positive hoffmans on left and right side.
Did an MRI which was clean
Was put on medication etc for depression anxiety
Was tested for deficiencies and had multiple CMP and CBC panels
Had a bunch of tests for antibodies done
Everything was clean
August had an EMG/NCS done
Following was found:
"Needle electrode examination was performed at right first dorsal interosseous, extensor indices proprius, pronator teres, biceps, triceps, extensor digitorum communis, cervical paraspinal muscles along with right tibialis anterior, gastrocnemius (medial head) andvastus lateralis. Fibrillations or positive sharp waves were not appreciated throughout the test. A few fasciculations were observed at right EIP muscle only. Features indicative of chronic motor axonal loss were observed at right triceps only.
Conclusion: This is an essentially normal EMG/NCT, which shows no EDX evidence of large fiber neuropathy or motor neuron disease."
To this day current symptoms and strange things happening:
If I flex my triceps they shake under the skin, like the nerve is firing off constantly and it can't contract fully.
If I flex any muscle, I tremble and shake violently.
When I am eating, when moving my arm away from my face it tremors. It's like the tricep and bicep are fighting against each other. It's not a tremor tremor, but more like a shaking sensation that I feel in my arm.
I wake up with internal vibrations and weird sensations
Both of my forearms are tight and are painful. I get tingling and numbness sometimes in my pinky and ring finger on both sides.
If I walk and swing my arms, I get tingling in the same fingers both sides.
My muscles are super tender especially the tendons.
The tendons on my legs and arms are extremely painful to touch if pressed.
I twitch 24/7 in both legs and other places randomly throughout the day.
When going to bed it's especially bad, but when I wake up I feel pretty ok until I start moving again and then it repeats.
The bottom of my feet a popcorn twitching constantly and overall I feel NOT NORMAL.
My neck is extremely painful to the point where I just am struggling everyday working or doing anything.
Other strange symptoms?:
1) If I flex my foot downward my calves go ballistic after releasing the stretch
2) If I flex my middle finger down or my ring finger on both hands, it starts to tremor.
3) When walking my legs feel heavy and awkward, although I can still walk just fine.
4) My buttocks especially get painful quick when I stand and am not moving….
5) When I flex out my fingers my whole arms feel like they're shaking for a second then it stops.
6) My fingers when stretched out, feel like they want to close inward,
like they're being stretched too far and they're getting pulled down
At the end of the day basically all of my muscles shake/tremble when flexed however, I have no clinical weakness and I don't feel weak usually, just fatigue, sore, and tight.
I'm in a sea of depression because I am struggling to handle this day to day. My medicine doesn't seem to be helping at all either…. don't know what to do.