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Need Help..peripheral neuropathy, chronic widespread pain and weakness
Hello. I'm hoping to obtain help from either a Mayo Clinic patient or Mayo Clinic Staff. I am 47 years old, female, married. For the past 10 years, I've been suffering with the diseases/symptoms that I have listed on my profile. However, the ones that are the most painful and have left me disabled are the peripheral neuropathy (nerve pain in both feet,legs,hands,arms), chronic widespread pain and weakness. fibromylagia and chronic fatigue, . I've been from doctor to doctor, with a host of med;s and the latest is a alternative doctor who has taken me off of gluten and dairy. It's been 3 months abstained from gluten and dairy but to no avail... my nerve pain and chronic fatigue and everything else remains! She tells me it takes about a year for me to abstain from gluten and dairy for my body to begin to heal and my symptoms to to heal therefore, my pain can go away. Is this true? I'm now considering a trip to Mayo Clinic because I don't know what to believe anymore..I'm desperate to find out why my pain continues. My med's are: 600 mg. Neurontin 3 x day, Fentanyl Patch 75 mcg., Topamax 150 mg., Plaquenil 100 mg, Armor thyroid 60 mcg., Herbal Vitamins for Andrenal Glands
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Hi Ralph,
Wow! I did read your incredible story and I am glad you found a treatment that is helping you. Had you not been in the health care profession, I am not so sure you would have made it. Your story is encouraging to millions of us with peripheral neuropathy. I have tried various meds and no improvement, the PN has increased quite a lot over past four years. It seems to hold at a level for a while, then gets worse, holds again, then worse again, etc. I plan to discuss your treatment plan with my physician. Thanks for sharing your experience.
Tried sanexas. Didn’t work for me. Thanks.
Hi,
I have shared what works for me a couple of times in different sites. When a person says they have SFN, it's like saying, "I'm sick, which, of course can mean many different ailments. This rotten disease is so different for everyone that it falls back on trial and error most of the time to get any relief. I suffered and tried many different remedies, and finally landed on the correct type/dose of CBD for me. Now my pain is tolerable. Perhaps you have access in your State? Try it if you can. Best of luck to you!
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