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Mystery. Muscle wasting, pain on skin, digestive issues.
Been dealing with this for 10 years, massive weight loss, muscle wasting, urine and bowel movement issues, pain on the skin of his chest....only is something touches it, now into cognitivs issues, tefuses to move, etc. Just started Ketamine treatments. One day maybe we can get to Mayo. Been all over and no one can over any answers...:(
See quick synopsis in pics below, I bring this to new doctors as a cover sheet for the thick file I have on him.
Anne Marie
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Hello @jam2moran and welcome to Mayo Clinic Connect. Your loved one has been through a lot and I am sure this has effected you as well. It is good that you are here to seek support from other members in the community.
Because of the vast symptoms and changes over the last 10 years, I can imagine keeping this all straight between specialists has been challenging and cumbersome. I wonder if you've considered getting care at a multidisciplinary facility such as Mayo Clinic where specialists work across departments to connect the dots so you don't have to be the conduit as much?
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