Mystery 10/10 pain, getting hard to keep going

Posted by bellamarielongo @bellamarielongo, 3 days ago

I will try to keep this as short as possible.
I’m a 23yr old female. In 2023 I began having symptoms suddenly and they progressed over time, the only diagnosis I have so far is POTS and a reversal of the natural curve of my cervical spine. I feel like there’s something more going on, I am in so much pain everyday I can’t do anything. My spine is the worst.. it’s my entire cervical and thoracic spine - I’ve had mris of any they were normal. It’s constant aching pain 10/10 over the counter pain meds do nothing. It’s also started to be accompanied by extreme pressure in the back of my neck / head and spine to the point where it makes me feel like I’m going to blackout because I’m not getting enough blood to my brain ( that’s what it feels like ). There’s a few other symptoms I have but they aren’t as relevant- my main concern is what is causing this amount of pain.. I had to quit my job I do nothing but lay in bed, if I try to go out and about it’s awful .. my quality of life is pretty much little to none at this point. I’ve tried trigger point shots - nothing .. I’m on gabapentin it does nothing .. I’m so tired and I’m in so much pain i don’t know what to do anymore but I can’t live like this and i desperately need help.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

crbarefoot | @crbarefoot | 1 day ago

In reply to @suzanne63040 "Were your CT and MRI scans done with contrast?" + (show)

@suzanne63040 the SRS specialists request a chest and abdominal CT without contrast. They may be able to use it with contrast, but they do request it without contrast.

crbarefoot | @crbarefoot | 1 day ago

In reply to @bajjerfan "@crbarefoot I don't recall saying that it is. You said earlier that MRI or CT must..." + (show)

@bajjerfan I must have misspoken. MRIs are not useful. I think some facilities can create the original CT as 3 D. My CTs were done previous to my even knowing of Slipped Rib Syndrome, so it was easier for me to mail my already completed CTs on disc to the Facebook site administrator and she converted them for me. She then scheduled a zoom and reviewed them with me. I only wish I had done this 5 years earlier! None of the specialists I saw ever mentioned SRS or a 3D CT

crbarefoot | @crbarefoot | 1 day ago

In reply to @bajjerfan "@crbarefoot I don't recall saying that it is. You said earlier that MRI or CT must..." + (show)

@bajjerfan there are programs that you can download to a laptop and convert your CT to 3D. So it does not have to be created 3D when it is run.

kerryflow | @kerryflow | 1 day ago

My 29 year old daughter is in the same boat . Nothing helps and we've tried everything !!! I wish she would come on these boards , but she doesn't want to bother .

kerryflow | @kerryflow | 1 day ago

In reply to @crbarefoot "@bajjerfan I must have misspoken. MRIs are not useful. I think some facilities can create the..." + (show)

@crbarefoot MRI's did nothing for my daughter , either : (

bajjerfan | @bajjerfan | 1 day ago

In reply to @crbarefoot "@bajjerfan I must have misspoken. MRIs are not useful. I think some facilities can create the..." + (show)

@crbarefoot

If existing files/images can be converted that readily outside of a radiology department why wouldn't they be more common? Was your Facebook site admin a retired radiologist? Most of the images don't mean much to the average person.

bellamarielongo | @bellamarielongo | 21 hours ago

In reply to @kerryflow "My 29 year old daughter is in the same boat . Nothing helps and we've tried..." + (show)

@kerryflow I’m sorry to hear that :/ it’s a hard journey But I hope she finds answers/ relief sooner than later

crbarefoot | @crbarefoot | 4 hours ago

In reply to @bajjerfan "@crbarefoot If existing files/images can be converted that readily outside of a radiology department why wouldn't..." + (show)

@bajjerfan the administrator is not a radiologists.

kenc | @kenc | 3 hours ago

In reply to @bellamarielongo "@heisenberg34 hi, yes I have a primary doctor as well as a pain management doctor and..." + (show)

@bellamarielongo Wait until you get old...say over 70.

kenc | @kenc | 3 hours ago

Something you may want to consider: My GP prescribes pain relief meds and also recommended I read a book by Sanjay Gupta, MD. The title of the book is "It Doesn't Have To Hurt". In the book, Doctor Gupta discusses various options to help relieve pain and offers some interesting insights into the causes of chronic pain. I purchased the book on Amazon. It comes in both written and oral forms.