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Mysterious shortness of breath: What has helped you?
I will try to make this as short as possible, but this has been going on for over 5 years, so it might be farily long.
Beginning in summer of 2012, I began having shortness of breath (SOB) with no other symptoms. I felt a constant need to yawn, and every few breaths wouldn't satisfy the SOB. I would take a deep breath, and felt like it would get "stuck" before satisfying the air hunger feeling. About every 3-5 deep breaths would satisfy it, only for it to return a minute later.
I got an endoscopy and other tests done, which revealed that I had some esophageal erosion due to acid reflux and a slight hiatal hernia and was diagnosed with GERD. I had always have bad heartburn, so I was prescribed with Prilosec, which I have been taking daily since them. I've tried stopping it a few times but the reflux always comes back a lot worse.
Lung tests and x-rays were normal. Heart tests normal. Blood test revealed a slight anemia but otherwise pretty normal.
I did some research reading forums where someone suggested taking vitamin B-12. Strangely, I took it and the SOB disappeared almost instantly. However, it only lasted a few days for it to return just as bad. I then started taking an iron supplement, which again made the SOB disappear quickly- same thing; symptom returned days later.
After further research, I came across a breathing exercise method called the Buteyko method. Essentially you do a lot of breath holding to build up CO2 and reduce breathing as the theory is that I had chronic hyperventilation causing too much CO2 to exit my body. After applying the method and reducing my breathing, the SOB disappeared after only 2 days and I felt completely normal. I continued the method a few more days then no longer felt the need to pursue the exercises. I was normal for a whole year when the SOB once again returned with some chest tightness. I applied the method again and the symptom went away, this time with a little more effort; after about 3 weeks. I included physical exercise which also helped with my breathing.
After that, I was normal for about 2 years. I mistakenly stopped or at least slowed down exercise and the SOB returned once again. I applied the method and began running for exercise but the SOB kept getting worse. It got so bad, I had multiple panic attacks and the feeling of completely empty lungs with the inability to satisfy it with deep breaths. I had to stop exercise altogether, apply the Buteyko method and do breathing exercises very carefully with very light and slow exercise. This helped, but it took many weeks for the SOB to improve. Then, it was almost normal when over a year ago as I was running, I couldn't get a deep breath to satisfy exercise-induced SOB. I have had SOB continuously since then (a year and a half).
I once again started doing breathing exercises and slowly building up physical exercise, but I can't do any prolonged cardio activity because the SOB gets to a point where deep breathing will not satisfy it. While the breathing exercises have helped, they have had very little effect compared to previous efforts. It seems that every time the symptom returned, greater effort yields few results.
I suspect there is something, some underlying cause that is causing the SOB that has alluded me this entire time.
So for the past few months to a year, the SOB is worse on some days, better on others, but never gone. There's no rhyme or reason or pattern for it. It's just there, sometimes affecting my sleep. I sometimes can't get a deep breath to satisfy it every now and then, but for the most part, a big gulp of air will satisfy it. But it returns seconds to minutes later. It's as though every breath doesn't deliver what it's supposed to, the SOB builds up, and then I have to take a big gulp of air to get rid of the feeling, pattern repeats. My breathing pattern is normal, however. I don't feel like anything physical is happening, but sometimes it feels like my airways and nostrils are slightly inflamed due to allergies, but when I don't feel inflammation the SOB is still there.
Recent lung function tests show normal- I don't have asthma, or any other problems with my lungs. Heart tests are normal though I did have about a two week bout of heart palpitations which came and went. Haven't had any for a while- it just mysteriously started happening then stopped. Blood tests are normal, though tests always show a slight elevation of biliruben which my doc thinks is Gilbert's disease.
I don't have sleep apnea (normal test), bloody oxygenation is normal, heart rate normal.
I recently saw local naturopath (since mainstream docs aren't able to help) who immediately suspected a liver problem when I described my SOB, possibly liver inflammation. He used an electrodermal testing machine to test his theory which did seem to show a problem with my liver and gallbladder. He gave me digestive enzymes and a gallbladder formula to help clear a bile duct clog, thus reducing liver inflammation. He also determined with the machine that I have an egg sensitivity so I've been avoiding eggs.
Been taking this and avoiding eggs for a couple of months, but there has been no noticeable improvement. Everything else is normal. Emotionally I'm normal- no anxiety, depression, etc. The SOB seems to be the only symptom of something, but always comes back worse, until a year and half ago when it came back and has remained since. I feel like I shouldn't have to do breath holding exercises every day just to maintain my breathing well enough to do every day things.
Does anyone have any idea of a possible underlying cause?
2021/2022 UPDATE:
Since my original post about 3-1/2 years ago, a lot has happened, so I’d like to update the post to share with others who come across this what I’ve done since then.
I have maintained a weekly Buteyko method breathing exercise regimen where I do a few of these breathing exercises 3-4 times a week in the morning. This, in combination with daily light to moderate exercise (specifically weight lifting, with 1 or 2 days a week of walking and light jogging), I feel has kept the air hunger symptoms tolerable and manageable. I have mostly good days with some not-so-good days, but doing a breathing exercise and knowing that it’ll get better again helps me get through those times.
I also have sinus inflammation which can exacerbate the symptoms, but I’ve also managed this, which in turn reduces the severity of the air hunger symptoms.
So, while I haven’t found a cure nor is the problem completely gone, I have been able to maintain normalcy in daily life and manage the symptoms through the strategies I described.
This discussion remains active, alive and well through the comments section where others who have similar symptoms have shared what has helped them as well as suggestions for possible solutions to explore.
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Thanks @merpreb and yes you are absolutely right re the smoking and I am using this as a reason to quit. I had a lung function test where they measured all kinds of things (without inhaler) 2 days ago and my intake/output and whatever else they look at was all perfect. So docs are stumped and just telling me they think it will go away as suddenly as it came on. I hope they are right, otherwise back to see them I go in 2wks with your suggestions (thank you, really!). They all said there is no reason I cannot fly and that 2wks of nothingness and clean air might just do the trick. I think they are clutching at straws now!
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1 Reaction@katgts- You are more than welcome. Let me first ask you a question. Did you doctors administer any pulmonary function tests? Actually a technologist does the testing (https://medlineplus.gov/ency/article/003853.htm). If they only tried one inhaler and it didn't work then I think that they should have tried more. There are a lot of different types of inhalers.You should have been tested before and after using an inhaler to see how much you inhale and if you exhale the right amount. Without accurate testing it's only guess work.
Now I get to scold you: You absolutely have to stop smoking. I smoked for 35 years and I can tell you that almost over night after I stopped smoking there was a big difference in how much easier it was to breathe, and enjoy it. There can not be any, "Oh it was only 5 cigarettes in 2 weeks." This is just an excuse not to quit. Every cigarette injures your lungs. It is accumulative so your lungs don't really don't "heal" in between cigarettes. There are also other diseases that can cause shortness of breath from smoking. They are COPD and emphysema.
https://www.mayoclinic.org/diseases-conditions/copd/symptoms-causes/syc-20353679
https://www.mayoclinic.org/diseases-conditions/emphysema/symptoms-causes/syc-20355555
Where do you want to go from here?
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1 ReactionThank you @merpreb for your reply! They tried me on an inhaler but it didn’t help unfortunately. This feeling only let up once (never went away completely) in these 3 weeks for 3 days. On the day it came back with a vengeance I had climbed a flight of stairs (as had been doing the previous days) had a cigarette (I know, very bad but that would have been cig #5 in 2wks and none since). I walked back down the stairs, sat at my desk and it hit me suddenly. It’s driving me nuts!!
@ashleyh and @katgts Good morning and welcome to Mayo Connect! First, congratulations on your new marriage @katgts and to you @ashleyh in July. I hope that we aren't looking at a new disease for newly married women, lol! In all seriousness I understand not being able to catch your breath as I am a lung cancer survivor. It can be very frightening to say the least. I am glad of one thing though, both of you have had testing done so a lot of things have been ruled out. It sounds as if you both might have inflamed and narrowing airways of the lungs. But this is just a guess. I'm not a medical professional so I can't diagnose you. After my first lung cancer and exercising for the first time in many years I also felt this.
@ashleyh- Just before you felt like you couldn't breathe what were you doing? And how shortly after you returned home did this begin? Did you do a lot of exercising that you weren't use to, scuba diving, etc? Did your doctors give you any inhalers?
@katgts- It seems as if you might have exercise-induced asthma, or more properly, exercise-induced bronchoconstriction.
Were you given an inhaler to help your breathing?
This link might help as this is only a guess on my part: https://www.mayoclinic.org/diseases-conditions/exercise-induced-asthma/symptoms-causes/syc-20372300
https://wexnermedical.osu.edu/blog/out-of-shape-or-exercise-induced-asthma
Both of you should get back in touch with your doctors and see if they think that you need inhalers. If you did not see a pulmonologist then I suggest you find one and bring your test results with you.
@katgts- If you experience any worsening while flying or when you land please seek medical attention. Inhalers can be a God send!
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1 ReactionI’m so glad I came across this discussion! I have had the same thing for 3 weeks. I was sitting at home when suddenly I couldn’t take deep breaths. The only thing out of the norm for that day was I went to the gym for a 2nd time in years but was only on the cross trainer at the lowest setting for 30mins. This inability to take deep breaths came on suddenly about 3 hours later. I have been to numerous doctors and emergency rooms. Bloods, chest films, ECG, ECHO, lung function all came back normal. No doctor can tell me what this is. I was told pleurisy, so was on high dose of ibuprofen for a week which gave me bloating and doctor put me on omeprazole. But the ibuprofen didn’t help apart from the first day or two. They then tried antibiotics just in case but no luck. anxiety has also been ruled out. It feels like there is something in the upper part of my chest blocking the air. It also blocks burps from coming up and I am taking peppermint oil and lozenges to relax it. If I change positions it helps and I can breath but very quickly that position will stop working and I have to find another one. Sort of feels like now I have a weight on my chest, possibly from the constant effort to try and expand my chest. I am going on my honeymoon today and was hoping this would pass by now but looks as though I won’t be doing any swimming, nice long walks etc as just walking up one flight of stairs makes it hard to catch my breath. If anyone comes up with a miraculous cure in the next few days I would be over the moon to hear!
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1 ReactionI am so happy I came across this post. I've had the same issues since July 2018. I'm a healthy, 23 year old and have never had problems like this in my life. I got married back in July, went on my honeymoon to the Bahamas, and when I came back home, I experienced shortness of breath and have ever since. Some days it's better than others, but it's always there. It almost feels uncomfortable to breathe deep. I've been to so many doctors appointments. My blood work is perfect and my lung/heart tests came back good. I even had my gallbladder checked and it's good. This is so frustrating and I hope we can all work together to find an answer!
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6 Reactions@jessitu- Good morning and welcome to Mayo Connect. A big thank you in pointing out another reason for Dyspepsia, or "air hunger". I've had Lyme 3 times and Anaplasmosis once, but had it with Lyme. I believe that doctors especially have to begin looking outside the box for medical explanations for symptoms. As the world heats it will be even more important to be vigilant. When did you have have Babesia? Are you still being treated? How are you feeling now?
For all of us:
https://www.lymedisease.org/lyme-basics/co-infections/babesia/
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1 ReactionHi, I am really new to this site but I saw your post and felt the need to respond. I also deal with air hunger on a pretty regular basis- I often say that it feels like my lungs are too small or that I just can't get enough oxygen! The severity varies. This symptom, air hunger, was a clear indicator of having an infection with Babesia, which is a coinfection of Lyme Disease. Have you done any research into Lyme disease and its co-infections? It might be worth a shot to see a Lyme-Literate doctor (LLMD) in your area if this air hunger persists. Babesia is a coinfection of Lyme, and one can become infected with Lyme (or babesia or the other coinfections) without knowing or having the bulls eye rash. The issue with this infection in general is that it is very difficult to get an accurate test done, which is why seeing an LLMD is SO important.
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3 ReactionsHopefully they help get some answers @tonyagregg. I don't have answers yet, and been trying to find some since 2012. It's manageable and more stable, but I'd still like to get to the bottom of it so it doesn't get worse again. Let us know if you find out anything.
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1 ReactionHe said its probably stress but he is referring me to a pulmanologist and we'll see
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