I was started on Mycophenolate 2 weeks ago. I have Unspecified myopathy (after seeing many specialists in Illinois, St Louis and at Mayo), many lab tests, radiology studies, muscle and skin biopsies, but it can’t be specified any further. That has, of course, been frustrating after 17 months of extreme symptoms. Last year my primary doctor tried 2 different rounds of immunosuppressive drugs. One had no affect and the other had a side effect that was so significant we had to stop it. The Mayo neurologist recommended steroids ( which I am now down from 60 mg daily to 40 mg daily) and could consider Mycophenolate. I started this on February 26, so I know it can take quite some time to work. Sadly, my symptoms are worsening but I stay hopeful this one will help. Just wondering if anyone else has taken this medication for this type of diagnosis and if it helped. Thanks so much.
Liked by Becky, Volunteer Mentor