I began experiencing debilitating leg pain that started in my knee and radiated to my groin. The pain was so severe I found it difficult to describe. I went to the ER where I underwent ultrasounds to check for blood clots and x-rays of my knees; however, no cause was found. Has anyone else experienced similar pain?
Hi Kathy, We certainly have to be our own advocates for healthcare…this is another example with the unexplained bleeding for your husband! I’m glad this had a happy ending with finding the 2 areas that were the culprits! You did an exemplary job with pushing for an answer!
Your last sentence is spot on! I think sometimes when we have a blood cancer or any illness, we tend attribute unexplained issues to that cause. But it’s not always so! That’s a great reminder. ☺️
Yes!, Lori, you and Kathy are absolutely right. When you have been struggling with something like MF as long as I have it is easy to blame everything that pops up on it, but the fact is I have found that I am also..... an "Old Man"........... GOSH! Perish the thought. I also have most of the other things that all older folks deal with.... it's just that they were over shadowed when my MF was really bad. I encourage everyone to stay pro-active with their situation. You don't need to second guess your doctors but you do need to follow what is being done and why it is being done. Know what the hoped for goals are and closely follow the results. By doing so, and giving this feedback to your doctor he/she has the best chance of success. Every day we are seeing new drugs and treatments that are targeted at MF and some of them are having a major impact on fighting this awful disease. MF has become survivable, so stary the course.
Connect
Connect
Like
Helpful
Hug
I began experiencing debilitating leg pain that started in my knee and radiated to my groin. The pain was so severe I found it difficult to describe. I went to the ER where I underwent ultrasounds to check for blood clots and x-rays of my knees; however, no cause was found. Has anyone else experienced similar pain?
Yes!, Lori, you and Kathy are absolutely right. When you have been struggling with something like MF as long as I have it is easy to blame everything that pops up on it, but the fact is I have found that I am also..... an "Old Man"........... GOSH! Perish the thought. I also have most of the other things that all older folks deal with.... it's just that they were over shadowed when my MF was really bad. I encourage everyone to stay pro-active with their situation. You don't need to second guess your doctors but you do need to follow what is being done and why it is being done. Know what the hoped for goals are and closely follow the results. By doing so, and giving this feedback to your doctor he/she has the best chance of success. Every day we are seeing new drugs and treatments that are targeted at MF and some of them are having a major impact on fighting this awful disease. MF has become survivable, so stary the course.
-
Like -
Helpful -
Hug
3 Reactions