Myelproliferative Neoplasms-Blood cancer info missing
Hello, moderators, I’m pleading for your help.Over and over I hear how those of us with MPN are not diagnosed when all the signs are present. Please, please update the Mayo Clinic site’s info on blood cancer. I was on the site yesterday and clicked on a link to blood cancers. MPN was not mentioned at all. I clicked on another link to blood cancers on Mayo’s site and again no mention of MPN only leukemias. MPN causes blood markers to ELEVATE yet the blood cancer info only talked about blood markers being low in blood cancer. Also, many doctors still think MPN is just a blood disorder. Time for Mayo and others to please update their info so patients can get properly diagnosed and hopefully slow progression instead of being diagnosed after a stroke or internal bleed sends them to the ER. After 12 years of high platelets and doctors ignoring my symptoms, I diagnosed myself. My story is too common, unfortunately. Thank you for listening.