Myelofibrosis or long Covid?

congrats! I think Posted by samlupowitz @samlupowitz, 2 days ago yep; Florida Here too (Allergy to cold, cold induced urticaria so I moved to Florida and Just got diagnosed with Myelofibrosis Dec 30, 2022 and PV Sept 2022 but records showed I had PV for years (LOL) Welcome to the cancer party: we are NOT ALONE
Y/ N Headaches
Y/ N Feeling Hot/ Sweating
Y/ N Night Sweats
Y/ N Ringing in the ears
Y/ N Blurred vision or blind spots
Y./ N Dizziness or vertigo
Y/ N Reddish or purplish skin (bruising)
Y/ N Unexpected weight loss
Y/ N Bleeding or clotting
Y/ N Early feeling of fullness (satiety)
Y/ N Itching (pruritus), especially after taking a shower
Y/ N Burning and redness of the hands or feet
Y/ N Tiredness (fatigue)
Y/ N Bone pain
Y/ N Large spleen/ liver
Y/ N High Blood pressure
Y/ N Iron regulatory of weight gain or weight loss
Anemia can cause weight gain Hemochromatosis weight lost
Sept. 12, 2019 - PV and the Disease Progression
Watch for signs;
97% Y/ N Extreme exhaustion (fatigue)
75% Y/ N Insomnia
65% Y/ N Depression
65% Y/ N Abdominal Pain/ spleen size, abdominal discomfort, bloating (feeling full)
60% Y/ N Uncontrollable itching (after hot shower)
59% Y/ N Inactive
56% Y/ N Night Sweats or Day Sweats (Feeling Hot)
53% Y/ N Dizziness and headaches
51% Y/ N Inflammation
64% Y/ N Contraction / Memory Issues (foggy)
52% Y/ N Restless leg symptoms
50% Y/ N Severe Bone or Joint Pain
48% Y/ N Breathing difficulty and Cough
47% Y/ N Craving weird foods
46% Y/ N Chewing and craving ice
46% Y/ N Acid reflux and heartburn
48% Y/ N Weight loss
40% Y/ N Fevers
39% Y/ N Pale Skin Color/ Anemia
38% Y/ N Muscles weakness or muscles soreness
37% Y/ N Chronic infections
30% Y/ N Numbness and tingling
28% Y/ N Inability to keep warm (poor iron absorption and oxygen levels).
35% Y/ N Overlapping symptoms of other Medical conditions
Weight Mass:
(Normal weight = less symptoms) Lower/ Higher weightmass = more symptoms
Woman will have more symptoms than men
56% Men are diagnosed with PV then woman
Yoga and Mediation (less sweating and less painful then excise)
Recommended Diets: Anti-inflammatory food list
Severe symptoms shows disease progression
Overproduction of blood will produce produces more symptoms
Stress symptoms interfere with PV symptoms
PV suffers should avoid extreme heat, and protect yourself from the sun. Drink plenty of liquids. Avoid hot tubs, heated whirlpools, or hot baths of any type. Also, tanning beds, sun lamps, and heat lamps can damage your skin PV suffers, guard against trauma or situations where you may be at high risk of injury, such as during sports or strenuous activities. Make sure that there is sunscreen and protective hat which can be available at any time and in arm reach. Keep cool.
Don't know about copy write law but I'm giving this to my doctor and ask him questions (GOOD LUCK) My heart goes out to you!

Had the uncontrollable itching about 5 years ago. No specialist had any idea what the cause was. Xanax controlled it and then it passed altogether. So, I thought it was caused by stress. Wrong! It was only after I was diagnosed with Myelofibrosis that the hematology oncologist said that the itching was probably the start of the disease.

Night sweats, extreme weight loss and chronic fatigue galore!

by samlupowitz @samlupowitz, 2 Nice to talk to a fellow Florian, My chronic extremely fatigue is so bad that I sleep more then my cats. Can't keep eyes wake, uncontrollable itching and list goes on.... wish or hoped for weight loss 200 lb but gained 40lb since hospitalized in sept; now 240 lb ugh! It's scary for weight loss if you don't have lot to loss. Having chronic ear infections; antibiotics Sept. Oct and Nov 2022 (skipped Dec but 2 weeks on antibiotic again 2023) Hospitalized for infections 2022 and "could been diagnosed with same high blood count 2020" Doctors blame it on infection - unknown PV, YES! I agree with you by samlupowitz @samlupowitz, It's the starting point and your body is telling "something is wrong" They the doctors don't seem to care until you get "Cancer diagnosis" My heart goes out to you! Prayers my friend Inverness Florida

Try Xanax for the itching. Itching is hell. The Xanax stopped it. Buy generic (Alprazolam). It’s cheap.

@samlupowitz, if you would like to seek a second opinion from Mayo experts in myelofibrosis and COVID recovery, you submit an appointment request here: http://mayocl.in/1mtmR63