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Myelofibrosis

Posted by dax1million @dax1million, 3 days ago

My husband has myelofibrosis. He has low platelets and has had 72 platelet infusions since the first of February. His cancer doctor started him on Vonjo three weeks ago, platelets are still low. Does anyone else have experience with Vonjo.

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1pearl | @1pearl | 12 hours ago
In reply to @davi0937 "Thank you @1pearl - maybe we will do the BMT at the same time 5 years..." + (show)
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Thank you @1pearl - maybe we will do the BMT at the same time 5 years from now! I’ve read the CALR is the least risky mutation- that is good!

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