Myelodysplasic Syndrome

Posted by beanglow @beanglow, Fri, Sep 27 2:35pm

I have been diagnosed with early MDS and I'm wondering if anyone else has had petechiae on your ankle, foot, instep, and heel that started out red and turned brown after that. My foot does swell up after being on it for a while and the instep begins to hurt and swell also. There is also a black spot on my instep which my PCP said is a superficial blood clot. I saw my hematologist on Thursday but forgot to ask him about it and of course, the office is closed today. Does anyone have any ides if this will remain this way or if it will eventually dissipate?

I have been diagnosed with PV and an early complaint before having. 2 mild strokes leading to the diagnosis was a right foot problem similar to yours. Three doctors looked at my foot could not diagnose any specific problem and insisted that I just learn to live with it. After the PV diagnosis when I had 2 mild strokes, the hemotogist also claimed that my foot issues had nothing to do with the diagnosis of PV or the strokes. After the strokes, my foot pain and discoloration faded. Now it is back and am concerned about having another stroke.

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@barbie75

I have been diagnosed with PV and an early complaint before having. 2 mild strokes leading to the diagnosis was a right foot problem similar to yours. Three doctors looked at my foot could not diagnose any specific problem and insisted that I just learn to live with it. After the PV diagnosis when I had 2 mild strokes, the hemotogist also claimed that my foot issues had nothing to do with the diagnosis of PV or the strokes. After the strokes, my foot pain and discoloration faded. Now it is back and am concerned about having another stroke.

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Thanks for your reply. My PCP did not seem to be concerned about it. I showed it to my hematologist/oncologist and he didn't seem to be concerned about it. I had an appointment to have an ultrasound on my legs and to see a vascular surgeon but had to cancel because I also have Chronic Intestinal Pseudo Obstruction and Sjogren's and was just too sick to go to the appointments. I have researched MDS and petechia is one of the symptoms of MDS. What is PV and which doctors do you see?

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