← Return to Myelodysplastic Syndrome (MDS)

Discussion
kjjjrader (@kjjjrader)

Myelodysplastic Syndrome (MDS)

Blood Cancers & Disorders | Last Active: Jul 30, 2020 | Replies (14)

Comment receiving replies
@kjjjrader

We were told it could possibly be this type, Bone marrow with 40% cellularity is consistent with MDS ringed sideroblasts with multilineage dysplasia, 15% ringed sideroblasts . Cytogenetics and Next Generation Sequencing not back yet.
Here are the rest of the results.
The results are abnormal and indicate a 5q deletion in 65%
of nuclei, most of which was monosomy 5, and a 7q deletion
in 69% of nuclei, some of which was monosomy 7. These
results are consistent with this patient's diagnosis of MDS.
My husband feels great right now. This is the best he has felt since he started the revlimid. Which he has been off of since mid September. His blood counts are stable with the last 2 lab test. Hemoglobin 9.6, platelets 135 and neutrophis 900. At this point we have not had another consult with the doctors at Mayo but our local oncologist is doing a watch and see. Labs every 2 weeks and we will see him again after the first of the year.

Jump to this post


Replies to "We were told it could possibly be this type, Bone marrow with 40% cellularity is consistent..."

@kjjjrader If at some point you feel that a second opinion would be helpful, I would encourage you to make an appointment with a Mayo facility. Has your husband ever been seen at Mayo before?

  Request Appointment