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Mycophenolate mofetil with Plaquenil

Posted by JohnWBurns @johnwburns, Jun 14, 2016

Is anyone on both Mycophenolate mofetil and plaquenil, for any reason? I have been on mycophenolate for a few months for neuropathy caused by Sjogren's but they will be adding plaquenil starting tomorrow.

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cblue | @cblue | Oct 28, 2023

I was just diagnosed with Sjogrens via lip
Biopsy -months after it was ruled out by lack of findings in blood work. My doctor prescribed the plaquenil only & cevilemine ( to stimulate saliva). Both these meds take weeks or months to work ( I read online, doc did not tell me). I’m new to this discussion, but I imagine your doctor told you of the very small chance of retinal damage . I spoke up my ophthalmologist & the risk is with very prolonged use. He will see me twice a year and said it does NOT happen suddenly (there are warning signs; apparently it does not happen suddenly), I suspect I haven’t added anything to the conversation, but i haven’t seen the whole conversation. Also, I’m newly diagnosed and am hanging on trying to get through each day. Unfortunately, thus far nothing to help with joint pain ( & I think , but can’t get my doctor to see me before 3 months ) - maybe there is nothing that can be done ? Apologies for anything thst may not be accurate.

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Colleen Young, Connect Director | @colleenyoung | Nov 3, 2023
In reply to @cblue "I was just diagnosed with Sjogrens via lip Biopsy -months after it was ruled out by..." + (show)
@cblue

I was just diagnosed with Sjogrens via lip
Biopsy -months after it was ruled out by lack of findings in blood work. My doctor prescribed the plaquenil only & cevilemine ( to stimulate saliva). Both these meds take weeks or months to work ( I read online, doc did not tell me). I’m new to this discussion, but I imagine your doctor told you of the very small chance of retinal damage . I spoke up my ophthalmologist & the risk is with very prolonged use. He will see me twice a year and said it does NOT happen suddenly (there are warning signs; apparently it does not happen suddenly), I suspect I haven’t added anything to the conversation, but i haven’t seen the whole conversation. Also, I’m newly diagnosed and am hanging on trying to get through each day. Unfortunately, thus far nothing to help with joint pain ( & I think , but can’t get my doctor to see me before 3 months ) - maybe there is nothing that can be done ? Apologies for anything thst may not be accurate.

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@cblue, we have many active discussions related to Sjogren's Syndrome. Here's a listing of all the discussions
https://connect.mayoclinic.org/search/discussions/?search=Sjogrens+

You may wish to start here:
- Sjogren’s Syndrome – Introduce yourself and meet others
https://connect.mayoclinic.org/discussion/sjogrens/

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