(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

@windwalker @ling123 ...I just read today that FL is the highest MAC state. I wonder if it is because FL is a retirement destination and MAC is typically an older women's disease. Are we "importing" the MAC cases here in FL or "manufacturing" them? Hard to figure...but I would not consider moving unless my case got really bad. Terri..I agree with your thought about diet...food certainly impacts our health and makes us able to either fight off or succumb to diseases.

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I came Florida 15 years ago from NY! I love this place but my husband wants to move because he thinks I’ll always be sick here. I don’t know what to do! My 5 kids all lives here and I love my grandkids so much. It will break my heart to leave them. I need help!!!!

@america here is my opinion on that. We moved to Tennessee for many reasons, but our ten children and thirteen grand babies all live in Connecticut. I was physically sick with MAC in Tennessee, but the lack of a support system (family) took more of an emotional toll on me, and the MAC actually got worse. After a year we moved back. I am still sick, but my family is ever present. That support should never be taken for granted. Whenever the good God calls me home, I would rather be found where my family is hands down! I hope this experience helps put perspective on the correlation between physical and emotional wellness. Moving away taught my husband and me a very valuable life lesson. Good luck. (@irene5)

Hi America...if it were me I would stay where u r and do the necessary things to stay healthy...baths, boil your water etc....the emotional component to this disease, I think is even more important...be happy💞

@spencersok, thank you for the prayers!

@america That was great advice from Irene and Jennifer. I am thriving where I live right now, but it could also be due to the great care I got at Mayo. I get the being near family thing. I miss my daughter so much that it consumes me (she lives in Virginia). As part of our down-sizing plan, I am including extended stays up in Virginia to spend more time with my daughter. I will leave there in the winters and go south again to our much smaller home. I cannot bear the damp cold winters up there. That dampness goes right to my lungs and I get sick. We have to follow our hearts on what is best for us.

I hope I'm not butting into a conversation that I shouldn't. I too, have MAC. This is my second go-round. I was first diagnosed in June of 2017. I took the standard 3 antibiotics for a period of 12 months and was told I was cured. When I went in for my yearly check up, my Dr. ordered a CT and it showed up in the scan. I had a Alveola Lavage and will see my dr. on the 20th for formal diagnosis. From what I'm reading, it doesn't sound very promising. This second time is so different than from the first. I can really feel it this time. I'm so sorry you all are having to go thru this. If anyone has any suggestions, I would love to hear them.
Again, this is my first attempt to join this group and I'm not sure of how to get started, and I'm sorry if I shouldn't have responded here.
ktkarenst

@ling123 I totally agree with your view on sugar and white carbs. I too tend towards higher blood sugar levels (pre-diabetic) even when I do not eat sugar and very rarely eat white carbs and also limit fruits. I've found an Ayurvedic herb called Gymna Sylvestre taken daily brings my sugar levels down very well. I think we need to do all we can to stay as healthy as possible.