Myasthenia gravis - can it come back?
I was diagnosed with MG at 21 and am now 69. For decades I had very serious difficulty walking, chewing, keeping my eyelids up, double vision etc. But in 2017 I realised that I had no symptoms even when I forgot to take Mestinon (by then 30mg per day). Seemed incredible. I still have no symptoms of MG, although I currently take Mestinon each day after a suggestion that the MG could recur. (I don’t know how reliable that info was though.) However my blood test still shows a level of 5.5 anti-receptor antibodies of acetylcholine. A positive result is 0.40. Is my lack of any symptoms surprising? Has anyone else had this experience?
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@wpmccarty Welcome to Mayo Clinic Connect! You certainly have a positive outlook on your disease!! Though we shouldn’t refer to it as your disease since you’ve mostly gotten rid of it!
I certainly hope that you’ll stay with us—you probably have lots of good tips!!
BTW, how did you find out about MayoClinicConnect?