Myasthenia Gravis post COVID

Yes. You did respond before and were incredibly helpful. I am not sure whether to hope she has MG or not. It’s not a great disease to have but at least it’s a diagnosis and there are treatments. I am skeptical because she doesn’t have some of the classic symptoms such as eye issues, trouble swallowing, etc, but she does have on and off again extreme muscle weakness that lands her in a wheelchair and it has been getting worse rather than better. I will keep toy posted on the results and I hope that you can find some relief and answers to your own struggle with long covid.

Best.

There are different types of Myasthenia Gravis.She might have Generalized which does not have any eye issues.You should tell your Mom to ask her Doctor to check for seronegative MG too.That should rule out MG that does not show up in the bloodwork.I think covid can bring on alot of autoimmune diseases.Was your mom checked for Lupus and Sgrogrens Disease through a Rhuematologist?I knew Lupus could cause issues walking,but I thought Sgrogrens only caused dry eyes and mouth.Apparently Sgrogrens can cause muscle weakness and walking issues.There is also a disease called LEMS.I would tell your Mom's neurologist to check for that as well.Has she had an EMG or muscle biopsy?I had one abnormal EMG and one negative one so now my neurologist is sending me to a whole neuromuscular team.They just can't figure it out.I feel bad for your mom.I hope they figure it out soon.It has been 2 1/2 years with no answers for me and I was pretty much perfectly healthy.I am in my 40s and exercised all the time.I had to quit my job and move in with my parents.I would never imagined I would be in this situation.I am sure your mom feels the same way.It is so frustrating.

Thank for you all of that information. She had an EMG about 4 years ago which showed some peripheral neuropathy but she will likely go for another one and I would like her to see a rheumatologist.

I am sorry to hear how much you are suffering. You certainly seem to be doing everything you can to advocate for yourself.

One long covid doctor suggested taking Luvox to see if that can tamp down inflammation so I think she may start that. There seems to be some evidence about SSRIs helping with that. There is also the option to take a longer course of Paxlovid to to try clear any lingering virus.

Wishing you all the best of luck and good health in your future.

This week, my neurologist is testing me for MG through a specialized EMG. I have had Long Covid for 3.5 years. I had a 5 month reprieve with Mestinon. I thought that was my ticket to normalcy. However, about 5 weeks ago, I started having LC symptoms again. It has gotten worse since then.....SOB, dizziness, lack of balance, brain fog, legs like jelly with a little tingling, PEM, etc. Feeling discouraged. I'll keep in touch on this thread. Good luck to your mom, Hopefully.

I developed ocular myasthenia gravis after my second Covid vaccination I did not have Covid just got vaccinated twice. ( I think I am up to 5 now) Shortly after that second vaccination I awoke and one of my eyes was only half open. My ophthalmologist suspected OMG anne sent me for the blood test and I was positive.
At the time, a low-dose of prednisone and just one mestinon per day seemed to bring me back to normal
Recently, I have seemed to develop some generalized MG with lung issues. I am up to 20 mg of prednisone and three or four mestinon per day and still do not feel normal. I am in favor of vaccines, but I do wonder if that triggered this
When I asked my neurologist, she said, what does it matter how- you have it.