My son was just diagnosed with primary generalized epilepsy
My 11yr old son was just diagnosed with primary generalized epilepsy. He has been having episodes of falling into like a deep sleep at school for the past year. When he has these episodes he is very hard to wake up and sometimes he drools. It can take several minutes to get him up. We were sent to a neurologist last year and had a sleep deprived EEG which came back normal and then we were sent to a sleep specialist and had two sleep studies done. The first one came back abnormal and the second one normal. The sleep specialist put him on concerta to keep him awake in school. This made things worse, because he started having these episodes while walking. They decided to admit him to the hospital and they had a team of specialists working with him. They did another sleep deprived EEG and it came back abnormal and so they diagnosed him with primary generalized epilepsy. I guess he doesn’t have the normal symptoms of a seizure and they think it is brought on by him not getting quality sleep at night even though he sleeps through the night. They are not doing anything for the sleep and they put him on seizure medication. He has been home from the hospital and is still having these episodes during the day at school. I am confused and concerned if he is being treated correctly. I feel like we are so alone, because he doesn’t present normal symptoms. I am looking for help and a better understanding of all of this. Since this has all started he is not the same happy little boy he use to be. I want a better understanding of all of this, so I can help him.