My Parkinson's life is so confusing - this is not easy.

Does anyone else have sever cramping in the bowels mainly in the before noon time? If talking about bowel pain or problems is not considered proper talk let me know. I am not on any medications at this time and think my next doctors appointment is about six months away. Basically just on some exercise things two or three times a day.

I always used to be very organized. I ran my own business with two locations. Now I get confused about what day it is and I often turn up for appointments on the wrong day or at the wrong time. I have all my commitments on Google calendars but I still get confused. This is a big frustration.
I have to make sure that I take someone with me into doctor appointments because I don't always understand what they are telling me.
Sometimes I wake up in the morning and I'm not sure where I am. We have moved a few times in the last ten years but I'm not even sure which Country I'm in. We have lived in the UK, the US and Spain during the last forty years.

@esther589 I am sorry to hear this! What are your most difficult symptoms that cause the confusion?

@hopeful33250 My husband takes sinemet at 7A, 11A, 3P and 7P. He has taken three does of Inbrija and says he has seen minimal to no improvement in his major 'off' symptom of extreme hot/cold body temps which really shut him down. Anyone else have this extreme temperature dysfunction? Face and groin sweating profusely and hands and feet and torso so cold he feels he's freezing. Hands feel as if they've been in ice water and forehead is red and sweating hot

@spatase I appreciate you sharing about your husband's use of Inbrija. I hope that it will continue to be effective for his "off times." How often does he take the Sinemet?

@spatase I had positive experiences with Inbrijia until I got oral and esophageal thrush. My mouth and throat became sore and inflamed. It worked like a charm on my break through symptoms. I was mad that the thrush prevented me from continuing with it.

I share your experience completely and it's good to hear something else say this. It's confusing for me, my husband and friends. This disease is really not what expected at all.

@hopeful33250 Intense tremors cause my shoulders, upper arms and, if I try to walk, my hips to lock up painfully.

Hello @goatgirl28

I am glad to hear that you have a medication to use when the tremor is causing pain. Is your pain in a specific location?

@21amy I use it as my emergency go to when the tremor is causing unbearable pain. It works quickly.