My Parkinson's life is so confusing - this is not easy.

Posted by johnnyvsn @johnnyvsn, Oct 27, 2024

I was officially diagnosed with Parkinson's May of 2019. I have been taking Rytary since diagnosis and can say it really does help me feel "normal", but just for windows of time. Sometimes the windows lasts a very short time, sometimes longer. I am not as sharp minded as I used to be. I just don't understand how my body can feel so bad a lot of the time, then feel normal at other times. Does anyone else struggle with accepting this as just the normal life of a Parkinson's sufferer?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

johnnyvsn | @johnnyvsn | Oct 28, 2024

In reply to @lisalucier "Hi, @johnnyvsn, and welcome to Mayo Clinic Connect. Seems like you have a lot of ups..." + (show)

The thing that makes me feel the best us moving. Just sitting is not good. Walking around eventually makes me feel much better.

Lisa Lucier, Moderator | @lisalucier | Oct 28, 2024

Hi, @johnnyvsn, and welcome to Mayo Clinic Connect. Seems like you have a lot of ups and downs with your Parkinson's symptoms.

I'd like to introduce you to @hopeful33250, who has talked about her Parkinson's diagnosis, and also @ronwolf @sisyphus @sherryallen @missbutterfly2be, who may have some experiences with themselves or a loved one feeling normal for windows of time and then feeling bad with Parkinson's. They may have some thoughts on whether this is common with this disease.

@johnnyvsn - have you found anything that helps your body feel better when it's feeling bad from Parkinson's?