My Parkinson's life is so confusing - this is not easy.

Congratulations on the progress you have made, @bruizersmom. I can understand your, "primary complaint." The after-effects of your stroke sound very difficult. Were you ever offered any post-stroke physical therapy or speech therapy?

Most definitely not!!! When I had my 3rd Grand Mal seizure, my life changed. The seizure was different...very colorful, very loud, my brain was constantly screaming and buzzing, I had all kinds of visual things going on as well as waving arms, tapping feet....I didn't know when I was talking out loud versus to myself, kept yelling at everyone "Am I dead, now??" Since then my Parkinson's (I guess) has been more active, especially the psychological aspects of it. I was forced to find my own solutions, because I got no understanding in the hospital, no help, and then no help from any kind of doctor out of the hospital. You just have to live insane or fix it yourself, by trial and error. 3 times I was discharged from the hospital even tho I still had a screaming, loud brain, no ability to concentrate, and my legs were still dancing by themselves.
No help. Just frustration, which I guess is my primary complaint, one year later.

@bruizersmom
I appreciate you sharing how you deal with the emotional aspects of PD. You have developed some great coping strategies that are working well for you.

In looking at your profile, I see that you have numerous health conditions. If you are comfortable sharing more, I wonder how you developed these great coping mechanisms. Have you always been creative in finding ways to heal?

Nice video.

I think you should specify "symptoms". My most troubling are mental or psychological symptoms, as opposed to physical symptoms.
I try to treat all of my mental...my brain episodes... the same: deep breathing, listening to music I can relax to, as well as music I dance to, singing outloud, forcing myself to do physical work when my apathy has me stagnating and worrisome, and just plain sleeping. With a combo of these I can usually pull myself out of a deep depression, including being very suicidal, or an anxiety attack that has me screaming and yelling at someone (and temporarily HATING them). Fixing my BRAIN is fixing a part of my body. Yes, I can do things to fix my brain. And with a lot of puching myself, I can break a period of apathy.

I just thought I would share this. I accidently picked up a toothbrush that is for children. It was heavier and fat. My spouse loved. He said it made him not shake as badly when brushing his teeth. I know that their is alot of DME that are not covered by Medicare. Hope it helps someone!

Thank you!

Hang in there. It is so easy to become overwhelmed. I have decided to do my best to be positive about my Parkinson's. My medications do allow me to live a somewhat "normal" life. At times. It helps to have friends. 😃

I can only speak as a caregiver..What you just posted sounds like my spouse. Good and bad days. Everyday I wake up to a different person. Sometimes good and sometimes not.

Many of you may already be familiar with the Davis Phinney Foundation Parkinson's. They have regular webinars and panel discussions. I thought that many of you might find this panel discussion interesting as a PD patient talks about his journey with PD. Here is the link to the program,