My Parkinson's life is so confusing - this is not easy.

Singing is a great therapy for PD patients, @wolfplanetzero. Some hospital systems offer PD choir practice. Here is a link to a video from the Parkinson's Foundation about singing,
https://www.bing.com/videos/riverview/relatedvideo?&q=PD+Singing&qpvt=PD+Singing&mid=810E6238E34D59E20AA5810E6238E34D59E20AA5&&FORM=VRDGAR
This video has information about how singing helps and also songs you can sing-along with.

Yes I do

My husband uses this . It helps with the freezing within 15 minutes after inhaling it. We have some with us at all times. He is in a program and we get it free - very thankful for the med and the program!

Singing loud and proud might also be beneficial. I usually sing positive songs like Sunshine on My Shoulders (John Denver) or Here Comes the Sun (The Beatles), or whatever song is stuck inside my head that day such as Our Lips Our Sealed (The Go-Go's). Besides strengthening my voice, singing usually boosts my mood and lessens my worries. Humming could also be helpful. Best of luck to you.

Hi @dodeebug,
After you try reading out loud for a week or so, would you let me know if you feel that it has helped?

Thanks I will try tonight. I love to read. Since I took care of dad with his PD for his last 2yrs I know some of the problems I am facing. But I do know each person has different problems
Thanks again for your suggestion

Hello @evynlouise and welcome to the PD support group on Mayo Connect. I'm so sorry that this diagnosis has been so difficult for you. How long ago were you diagnosed? What type of therapies have you had? For example, medication, physical therapy?

One of the most important therapies is regular exercise. I know it is difficult to think about movement when you don't feel well, but it is so important both physically, cognitively, and emotionally. Here is a link to information from The Davis Phinney Foundation about the importance of exercise, https://davisphinneyfoundation.org/resources/exercise-and-parkinsons/

Could you share more about your activity level?

Hi I'm just another PD gal. The pills I take 3 times per day seem to help with the tremors . I have no special diet but try to eat more fruits and veggies. We like raw ones better than cooked. Your kids may have fun making a tray of carrots, celery stuffed with peanutbutter, little tomatoes, radishes, broccoli, cauliflower. And a little dressing for dip
Sleeping is another thing as I am with you there. I try to read myself to sleep I am going tell my Dr on next visit
.i try to exercise and maybe you could get the kids to do it with you. Since you are a single mom, I've been there, you should take a moment for yourself and if you need to cry just do it. Then tell the kids you are trying to do your best but they need to help you. Kep writing on this Mayo group for PD. I also joined Michael J Fox group.
Some days I want to give up but I love my family and would not want to hurt them. I have told my family I forget things now and when talking I will forget words. I just laugh and sad, hey it's my PD
hang in there you are not alone there is a bunch of us and we need to talk to each other. Oh bye the way I have RLS and take Ropinirol and works great
Your PD friend and my prayers and blessings are with you and family.

I

This is very confusing and I hate that that I have to track everything such as food, when I go to sleep, how much water I drink, whatkind of mood I’m in etc. And 90% of the time you still can’t figure out what is causing the side effects. just when you think you’re starting to feel normal Something else comes up. And it’s generally another side effect I have good days and bad, but unfortunately, I have more bad than good. I have not slept a full night since I got this. Surprisingly though I’m not .I have had to cancel plans at the last minute because of the way I feel. I hate the panic attacks that I get. And I really hate the restless leg, but I have to say is what I hate most is what it appears to be doingto my kids. I’m a single mom and raised my kids alone and was very independent now I have to depend on others. And I can see the worry on my kids faces. The really sad thing is I’m stuck with it. There’s no cure so I’m trying to make the best of it. It’s probably one of the worst things I’ve had to deal with in my life. and I really hate when they say the medication helps you manage the quality of life. I’m sorry I don’t see any quality in
This way of life. Today has seemed to be one of the better days, but that’s always something to change when I take my next dose but day by day I pray it gets better

Hi @dodeebug,

I love that phrase, "...the word is hanging in the air right in front of me but my brain won't let me say it." Great description of how frustrating it can be!

There is one thing that I learned in speech therapy is the value of reading out loud for a few minutes each day. While it doesn't necessarily fix all of the speech problems you might have, it makes a positive difference overall.

Will you give it a try and let me know what you think?