My new nephrologist wants to decrease my Tacrolimus dose.
My new nephrologist is considering reducing my Tacrolimus from 3mg twice daily to 2mg twice daily. I have been taking Tac for about 8mos. So far it’s working. The thought of decreasing my medication is anxiety provoking. This is the only medication I am currently taking for MCD. My fear is coming out of remission and having to start over again with prednisone. Are there side effects with reducing Tacrolimus? I have not been able to find information on Tacrolimus side effects related to MCD. Most of the the information about side effects that I have found are transplant related symptoms. Please share any information related to your experience with Tacrolimus. What side effects may be related to reducing Tacrolimus? Thank you for sharing.