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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?
My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person's balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.
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Hi @rose4622,
I'm inclined to let your doctor's office know about that as soon as possible. A call or a note on their patient portal would be a good idea today.
Doing better Teresa. Went to see my acupuncture Dr. and it has made a big difference.
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1 ReactionWonderful, @rose4622. I'm glad to hear you are feeling better!
My husband had surgery for an acoustic neuroma 8 years ago this May. He had a reoccurrence last Feb. 2018 in the same area. The tumors did affect his balance, and this time his right eyelid. His tumors have been on the right side and affect the seventh nerve. In September 2018 he had a platinum implant inserted in his eyelid to allow his eyelid to close. From February to September he needed to use an eye patch and several types of drops and gel drops to lubricate his eye to block out light, sediment in the air.
Hello @dtc629,
I appreciate your sharing your husband's story about his treatments. It sounds like he has been approaching the problem in a very systematic way. Good for him and you!
How is he feeling now? Are his symptoms of balance better now and what about his vision?
Hi Its me after a long time. I had my surgery June 2018. The 8th Cranial nerve was cut. This has affected my balance a lot. After reading other peoples testimonies, I feel Blessed. I do have very few lasting effects. I have found that when the barometric pressure changes, it causes the dizzy feelings more. Walking straight can be a challenge, but at least I'm still here to stagger. After losing my hearing in my right ear the sound can be deafening at times. I will say through all of my experience, there is always someone who has it worse off.
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2 ReactionsGood to hear from you, @vickid117. I'm glad that you are doing reasonably well since your surgery last year. It sounds as if your attitude has taken you through some difficult times and that you can be grateful for what you have.
Since your surgery, do you now hear from your right ear?
@hey vickied117. Hello I had brain surgery March 10, 2014. My balance when the barometer changes can be devistating to my balance. I can’t tell
Where noise is coming from because I lost my hearing in my left ear due to brain tumor. It was a schwanoma. Every day is challenging. I am alive , staying positive. And thankful💕
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2 ReactionsI have Phonak hearing aides. The right hearing aide tells the left one what it hears. It's confusing to know where the sound is coming from. Total hearing loss in right ear after surgery. It could be a lot worse. Keep positive all who are going through this.
At least we can be thankful it was non cancerous. The balance problem is ongoing. It's better than what it was in rehab. The ringing in my left ear is a daily thing. Life is definitely different since the tumor removal. Best Wishes for continued healing.