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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?
My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person's balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.
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Ok, @rose4622, I understand now. Your husband can take you on Nov. 1, if you can get an appointment. I'll pray that someone at Mayo gets back with you soon.
I'm glad that your eye doctor was able to give you some first aid for the problem. I'm sure you needed to get the eye covered and keep it moist.
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1 ReactionWas not able to reach Mayo by phone so I sent an electronic request.
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2 ReactionsGood idea, @rose4622
Persistence is a good idea!
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1 ReactionGot and appt with Dr Bendock for Nov 1. Yay! Will let me take my MRI I'm getting done here.
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2 ReactionsFabulous. Have you met Dr. Bendock before, @rose4622? You can really see his kindness and knowledge come through on our video Q&As, like this one:
#MayoClinicNeuroChat Live from American Association of Neurological Surgeons Annual Meeting https://connect.mayoclinic.org/webinar/mayoclinicneurochat-live-from-american-association-of-neurological-surgeons-annual-meeting/
Go to this page https://connect.mayoclinic.org/webinars/ and use the search term "Bendok" to see the other Q&As that he's done.
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1 ReactionThat is wonderful, @rose4622 ! I'm so glad that all came together for you on Nov. 1st.
How is your eye feeling now after using the meds and the patch?
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1 ReactionYes, Dr. Bendock did my craniotomy. He is awesome! My eye is a little better. It may take some time. Dr. Weisscopt resectied the tumor. He is an ENT surgeon. I'm going to try to see him too.☺
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2 Reactions@rose4622
I hope you get to see everyone that you need to on Nov. 1, Rose. Will you keep in touch and let me know how you are doing?
Yes I will. ☺
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1 ReactionMy eye feels better when the patch is on but the patch greatly affects my balance. I went shopping with my daughter today and when I got out of the car I went backward instead of forward. My daughter caught me just before I fell over on some rocks and took me into the house to my chair. Now that was scary!
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