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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?
My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person's balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.
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Yes, Dr. Bendock did my craniotomy. He is awesome! My eye is a little better. It may take some time. Dr. Weisscopt resectied the tumor. He is an ENT surgeon. I'm going to try to see him too.☺
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2 ReactionsThat is wonderful, @rose4622 ! I'm so glad that all came together for you on Nov. 1st.
How is your eye feeling now after using the meds and the patch?
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1 ReactionFabulous. Have you met Dr. Bendock before, @rose4622? You can really see his kindness and knowledge come through on our video Q&As, like this one:
#MayoClinicNeuroChat Live from American Association of Neurological Surgeons Annual Meeting https://connect.mayoclinic.org/webinar/mayoclinicneurochat-live-from-american-association-of-neurological-surgeons-annual-meeting/
Go to this page https://connect.mayoclinic.org/webinars/ and use the search term "Bendok" to see the other Q&As that he's done.
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1 ReactionGot and appt with Dr Bendock for Nov 1. Yay! Will let me take my MRI I'm getting done here.
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2 ReactionsGood idea, @rose4622
Persistence is a good idea!
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1 ReactionWas not able to reach Mayo by phone so I sent an electronic request.
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2 ReactionsOk, @rose4622, I understand now. Your husband can take you on Nov. 1, if you can get an appointment. I'll pray that someone at Mayo gets back with you soon.
I'm glad that your eye doctor was able to give you some first aid for the problem. I'm sure you needed to get the eye covered and keep it moist.
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1 ReactionI saw my eye Dr yesterday. She gave me salve, eye drops and told me to wear a patch over the eye. I have been calling Mayo all day but haven't gotten thru yet to scheduling. 😥
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2 ReactionsHello @rose4622
I'm sorry to hear about your eye not closing, I'm sure that must be worrisome for you. I am glad that you can get in on November 1. Will you try to see an eye doctor before then? Will you keep me posted on how you are doing?
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1 ReactionHaving a problem with my eye today. It won't close. Has to do with facial nerve damage. Called Mayo about it and was told to see my eye doctor then schedule with surgeons at Mayo. Talked to husband and he can take me to Phoenix Nov 1. Will call scheduling at Mayo tomorrow.
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