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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?
My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person's balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.
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I saw my eye Dr yesterday. She gave me salve, eye drops and told me to wear a patch over the eye. I have been calling Mayo all day but haven't gotten thru yet to scheduling. 😥
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2 ReactionsHello @rose4622
I'm sorry to hear about your eye not closing, I'm sure that must be worrisome for you. I am glad that you can get in on November 1. Will you try to see an eye doctor before then? Will you keep me posted on how you are doing?
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1 ReactionHaving a problem with my eye today. It won't close. Has to do with facial nerve damage. Called Mayo about it and was told to see my eye doctor then schedule with surgeons at Mayo. Talked to husband and he can take me to Phoenix Nov 1. Will call scheduling at Mayo tomorrow.
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3 ReactionsI've scheduled an MRI here and will send disc to my surgeons in AZ.
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3 ReactionsIt is usually 7 hours but I have to stop a lot so it takes about 8.
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2 Reactions@rose4622
You will undoubtedly feel better as time goes on, Rose, and then you can make the trip. How far it is to Phoenix?
I got a call back from my doctors nurse. She insisted that I must make a trip to Phoenix for my post surgery MRI and visits with my surgeons. I told her I am not well enough to travel right now but will schedule asap.
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1 ReactionSounds good, @rose4622. I'll look forward to hearing from you when you have more information.
I have to call and leave a message for him. I am in NM. I will give an update when I hear back though.
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1 ReactionThanks for the update, @rose4622. I hope you do get some better pain control. It does sound like you are getting some good support. Speech therapy is a great thing. I've had it several times after vocal cord surgery. Be patient with yourself, this will not resolved itself quickly, so take it easy and allow yourself to depend on others as much as possible.
Will you post an update after you see your surgeon today?