My Mother's Kidney Getting Smaller

Posted by surbhisharma5810 @surbhisharma5810, Dec 13, 2021

My mum's serum creatinine is 2.50 and B.UREA is 97, in how much % her kidney is functioning, does she need a transplant? What should I do

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Hi @surbhisharma5810, welcome to the patient community. You're asking a question that only your mum's medical team can answer. Has transplant been discussed as a potential option for her? Are you able to accompany her to her medical appointments to discuss treatment options?

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@colleenyoung

Hi @surbhisharma5810, welcome to the patient community. You're asking a question that only your mum's medical team can answer. Has transplant been discussed as a potential option for her? Are you able to accompany her to her medical appointments to discuss treatment options?

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They did a microbiology test for her, to check which bacteria is causing the infection but the results turn out to be negative which means there is no bacteria present in her kidney. I wonder then how her creatinine is 2.50 and B.UREA is 97.

The doctor has not suggested transplant but he wants to continue her medication, I am wondering what if these are early signs of CKD.
Unfortunately, I can't assist her because we live in two different countries.

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I have CKD. Left kidney removed in 2004 from tumor on Adrenal gland, cancer. Right kidney partial nephrectomy from a small mass, 2014. My GFR is 48 and holding, my Creatinine is 1.2 and holding, My Bun is 19 and holding. Been over 17 years since I was diagnosed CKD Stage 3 Moderate and still the same. I have blood work every 6 months. I have been on a strict diet all those years. No red meat but once a week, the size of a deck of cards, no potatoes, yams, yogurt, bananas, NOTHING 'with Potassium in it. I mostly eat Fish, Salmon, Chicken, Rice, Red and Green vegetables and fresh fruit. No eggs at all. Eggs mess with your protein and raises your Bun. My Nephrogolist always asks me what I am putting inside me and on the outside, because it all ends up getting inside. No deodorant because it contains Titanium Dioxide, so I use baking powder. Plus many medications get stuck in my kidney and cause Acute Renal Failure. I have a whole list of ones that do that, including Cipro. Ask your doctor about all this. NOTE: NO PORK ever.

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If she hasn't changed her diet to Plant based, now is the time to do that….Diet is everything.

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And she needs to get out and walk. Or get her a treadmill and have her walk on that. But she needs to move. Plus up her fiber intake. Fibers move toxins through the instines. You will be surprised how stasifying plants …beans, tofu for protein is to eat.

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don't understand why docs do blood tests often but don't do yearly scans. think you've got to look at the organ as well as examine blood tests. also most nephrologists tell you nothing about diet. you're really on your own. mayo is good source of information. you just have to keep searching. nephrologists need to be more pro-patient.just waiting for kidney function to worsen isn't the answer. i really don't understand the nephrology attitude. doesn't seem that doctors are actively working to find cure or viable treatment.
what you put into your body can help or hinder you.

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I have lucked out with my Nephrologist. He does blood work every 6 months and an Ultra Sound on my Partial Solitary kidney once a year, plus since I also have 4 Aneurysms, he works with my Vascular doctor to add CT of kidneys and intestines once a year. He also manages my medications. In other words if another doctor wants to add a medication, he consults my Nephrologist first. Those Nephrologists are out there, but hard to find.

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@petuniamom567

don't understand why docs do blood tests often but don't do yearly scans. think you've got to look at the organ as well as examine blood tests. also most nephrologists tell you nothing about diet. you're really on your own. mayo is good source of information. you just have to keep searching. nephrologists need to be more pro-patient.just waiting for kidney function to worsen isn't the answer. i really don't understand the nephrology attitude. doesn't seem that doctors are actively working to find cure or viable treatment.
what you put into your body can help or hinder you.

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I totally agree about Nephrologist. In my more than 30 years with CKD the most anyone said about diet was ‘limit sodium’. Even a few renal dietician’s don’t fully help. The scans have been random and slowly I literally lost a kidney(atrophy) not understanding why. On my own through research I decided to eliminate all animal protein because it’s hard for the low functioning kidney to process.I continue to hope this helps. All my other doctors support this Not the kidney doc. They never studied nutrition nor do most follow recent data( if it’s not proven)!

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what can kidney disease patients do about the doctor passivity. very strange situation. we're seeing these physicians for help, not to simply to tests and tell us the dire news. why aren't the large medical centers doing more research on treatment. they seem to center on
transplants. patients want to be treated so they can avoid transplants and dialysis. the situation amazes me. have a good friend who is
in the same predicament your are. constant blood tests. then one they didn't like followed by scan which showed kidney almost totally atrophied. very strange. hope we all improve. have to do something about doctors, though.

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