My mom has PV

Posted by tleona3024 @tleona3024, Dec 8 8:19am

Hi
My mom (74) was diagnosed with PV (aug 2024). Hemotologist believes it may have had PV since 2022. She did the Jak2 test and she’s positive. She did the bone marrow biopsy and she’s done two phlebotomies and started HU medication 500mg x 3 a week. Also takes baby aspirin daily. The first phlebotomy she tolerated. The second knocked her socks off. Doc stopped phlebotomy to see how the medication works only. She just did blood work and hemacrit is increasing (.49), doc targeting under .45. In Oct 2024 it was .43
I suspect that doc will increase meds.
Anyone else in a similar situation? Can PV be managed without phlebotomies?

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tleona3024 | @tleona3024 | 4 days ago

Thank you and sorry you are also dealing with this. My mom was diagnosed end of august - so get a bit before you were. These things are never fun but nice to know there is a forum where folks can share their stories.

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