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My MDS does not respond to treatments. What's next?

Posted by jeffreykassover1 @jeffreykassover1, Aug 13 3:22pm

Have not responded to any treatments, not about to try transfusions only, what can I expect. I am 77 years old.

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jacklyn | @jacklyn | Dec 1 6:46pm
In reply to @drawlings0803 "Hi Debbie, Don’t have a clue what caused my MDS. I had breast cancer 17 years..." + (show)
Profile picture for drawlings0803 @drawlings0803

Hi Debbie,
Don’t have a clue what caused my MDS. I had breast cancer 17 years ago. Drs think the MDS might’ve been caused by the chemo & radiation I received then.
But who really knows? And, at the end of the day, it doesn’t really matter.
We just move forward, get as much information as we can to make the best decision. There’s no easy answer. As I said before, I feel God led me to what I am going through right now, so I have faith He will get me through it.
Hugs,
Diane

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Hi there. . I had breast cancer 18 yrs ago and I progressed from MDS for 9 yrs without treatment. Watch and see I think they called it. Then I went to CMML and now AML. I was told the same thing. It could be from my previous treatments. Like you say it doesn’t matter. I sm doing the 7+3 chemo
Infusions. 5 days a week and 2 days the following any chemo pill for 14 days. After first cycle I went into remission. But I will still have to take these infusions for life. Maybe they will cut back on the days and the time in between cycles. They need to find the sweet spot they call it. It’s not do bad. It’s nothing like the chemo you got for breast cancer. I did the accelerated treatments. )4) and 25 radiation treatments and 4 booster treatments different machine and points directly to the breast. I think the radiation
Was the problem but who knows. I am 77 too old for a BMB. I will keep you in my prayers.

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hanya | @hanya | Dec 2 8:39am
In reply to @dax1million "@janetlen But thank God transfusions are available. Without them where would we be. We have new..." + (show)
Profile picture for dax1million @dax1million

@janetlen
But thank God transfusions are available. Without them where would we be. We have new great grandbabies to see, many occasions to celebrate. Beautiful things on Gods earth to see. God gave all these doctors, scientists, and many manufacturers the knowledge to develop transfusions, with his mercy he looked into the future and saw our need. Thank you God.

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@dax1million
Hello ! I also believe that the GOOD LORD provides us with smart , good doctors and nurses to take care of us ! Where would we be without them? I pray for doctors and nurses so they are blessed with health and love !! Wishing everyone best HOLYDAYS AND IMPROVEMENT IN HEALTH PROBLEMS!
Hanya

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amberl99 | @amberl99 | Dec 3 9:17am
In reply to @jacklyn "Hi there. . I had breast cancer 18 yrs ago and I progressed from MDS for..." + (show)
Profile picture for jacklyn @jacklyn

Hi there. . I had breast cancer 18 yrs ago and I progressed from MDS for 9 yrs without treatment. Watch and see I think they called it. Then I went to CMML and now AML. I was told the same thing. It could be from my previous treatments. Like you say it doesn’t matter. I sm doing the 7+3 chemo
Infusions. 5 days a week and 2 days the following any chemo pill for 14 days. After first cycle I went into remission. But I will still have to take these infusions for life. Maybe they will cut back on the days and the time in between cycles. They need to find the sweet spot they call it. It’s not do bad. It’s nothing like the chemo you got for breast cancer. I did the accelerated treatments. )4) and 25 radiation treatments and 4 booster treatments different machine and points directly to the breast. I think the radiation
Was the problem but who knows. I am 77 too old for a BMB. I will keep you in my prayers.

Jump to this post

@jacklyn bmb no big deal. Had my first in June. Gives drs a lot of necessary info and keeps the guessing out of it.

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