1. < Pancreatic Cancer

Husband had Whipple surgery and chemo: He's uncomfortable

Posted by joanalc @joanalc, Jan 31, 2023

I'm trying to be supportive, but he's to undergo chemo for 6 months, and have 5 to go. He's uncomfortable much of the time. Help!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 2, 2024
In reply to @dantina777 "Hi Colleen! Its is actually for my son with Dr Kendrick at St Mary's." + (show)
@dantina777

Hi Colleen!
Its is actually for my son with Dr Kendrick at St Mary's.

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Thanks for clarifying, @dantina777. I believe fellow members like @nvan22 @wjk @colorafo19 @jamilynne can answer your questions about what to expect with surgery and working with Dr. Kendrick.

If you are accompanying your son, you may also appreciate these discussions:
- What is the waiting area like for families at St. Mary's?
https://connect.mayoclinic.org/discussion/brain-surgery-question-for-families/
See all: https://connect.mayoclinic.org/search/discussions/?search=st.%20Mary%27s

Dantina, what questions would you like to ask about the upcoming surgery? How is your son doing?

REPLY
dantina777 | @dantina777 | Dec 2, 2024
In reply to @colleenyoung "@dantina777, just making sure that you saw the reply from @nvan22. Dantina, will your surgery be..." + (show)
@colleenyoung

@dantina777, just making sure that you saw the reply from @nvan22.

Dantina, will your surgery be with Dr. Kendrick at St. Mary's?

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Hi Colleen!
Its is actually for my son with Dr Kendrick at St Mary's.

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1 reply
dantina777 | @dantina777 | Dec 2, 2024
In reply to @nvan22 "If you have any other questions glad to help! Nancy" + (show)
@nvan22

If you have any other questions glad to help!

Nancy

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Thanks!

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nvan22 | @nvan22 | Dec 1, 2024
In reply to @nvan22 "Yes it was at St Mary’s we, my family stayed across the street at the Staybridge..." + (show)
@nvan22

Yes it was at St Mary’s we, my family stayed across the street at the Staybridge Suites. My surgery was October 13 2022
I’m doing great no signs of disease returning. Gained 5 pounds. 🙂

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If you have any other questions glad to help!

Nancy

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 1, 2024
In reply to @dantina777 "@nvan22 just want to ask, was your surgery done at St Mary's Hospital in Mayo? When..." + (show)
@dantina777

@nvan22 just want to ask, was your surgery done at St Mary's Hospital in Mayo? When did you have it done with Dr. Kendrick? Thanks!

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@dantina777, just making sure that you saw the reply from @nvan22.

Dantina, will your surgery be with Dr. Kendrick at St. Mary's?

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1 reply
joiedevivre | @joiedevivre | Nov 25, 2024
In reply to @joanalc "Many thanks for your responses. His appetite is good, but still no weight gain 😞" + (show)
@joanalc

Many thanks for your responses. His appetite is good, but still no weight gain 😞

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My husband lost 10kgs after having had 66% of his pancreas removed. Surgeon put him on Creon. He takes 3 tablets with every meal and in a year he has regained his pre-surgery weight. He is still on chemo but fortunately no nausea.

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nvan22 | @nvan22 | Nov 21, 2024

Yes it was at St Mary’s we, my family stayed across the street at the Staybridge Suites. My surgery was October 13 2022
I’m doing great no signs of disease returning. Gained 5 pounds. 🙂

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1 reply
dantina777 | @dantina777 | Nov 20, 2024
In reply to @nvan22 "My results are the same Dr Kendrick was my surgeon everything was done laparoscopically 5 tiny..." + (show)
@nvan22

My results are the same Dr Kendrick was my surgeon everything was done laparoscopically 5 tiny incisions but I can barely see three of them. I am NED. Went back to Mayo for the 3 week intensive radiation vs the 5 week. In the end my tumor was dead he just peeled it off during surgery. The journey is far from over though it’s like having bariatric surgery so you learn to eat all over again and expect to lose weight. I lost 20 lbs I know people who have lost 40 lbs it’s very hard to gain the weight back. My highest CA-19 was in the 60s I believe the highest maybe it was a little higher. I am also done to very low single digits. Best of luck to you. You are in great hands!!

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@nvan22 just want to ask, was your surgery done at St Mary's Hospital in Mayo? When did you have it done with Dr. Kendrick? Thanks!

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 1, 2023
In reply to @joanalc "My husband had Whipple surgery in Nov 2022, followed by 6 months of chemo. He seemed..." + (show)
@joanalc

<p>My husband had Whipple surgery in Nov 2022, followed by 6 months of chemo. He seemed to be doing well until 2 months ago. He is in lots of pain(shoulders and knee), lacks energy, is lethargic, hasn't gained much weight, has difficulty walking due to joint pain. He also has neuropathy in his hands and feet. His last scan in July was clear; another is scheduled for Oct. I'm concerned. Any tips?</p>

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@joanalc, how are you and your husband doing? Were you able to make an appointment to see a symptom management nurse or his oncologist?

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lvtexas | @lvtexas | Sep 21, 2023
In reply to @joanalc "My husband had Whipple surgery in Nov 2022, followed by 6 months of chemo. He seemed..." + (show)
@joanalc

<p>My husband had Whipple surgery in Nov 2022, followed by 6 months of chemo. He seemed to be doing well until 2 months ago. He is in lots of pain(shoulders and knee), lacks energy, is lethargic, hasn't gained much weight, has difficulty walking due to joint pain. He also has neuropathy in his hands and feet. His last scan in July was clear; another is scheduled for Oct. I'm concerned. Any tips?</p>

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Ask for a vitamin panel; whipple affects vitamin absorption. Take supplements.

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