My Experience with Neuropathic Therapy Center at Loma Linda University

Posted by leslierh @leslierh, Aug 5, 2023

In 2010 I was diagnosed with a cancerous tumor in my fallopian tube. The treatment was surgery and five months of intense chemotherapy. With much gratitude to the professionals at the Mayo Clinic in Scottsdale AZ I can now, nearly eleven years later, proudly say that I am still cancer free. However, one of the side effects from the chemotherapy has been neuropathy in my feet which has become more pronounced in recent years. I also have been managing hypothyroid disease for the past forty or so years and stand for hours a day as part of my work as a soft tissue therapist. All contributory factors for peripheral neuropathy.
The neuropathy for me presented as random shooting pains/lightning bolt type sensations which had become very debilitating and limiting my ability to walk any distance. After researching and finding only drug related options, I had become discouraged. During one of what had become many a sleepless night looking online for related information I just happened across the Neuropathic Therapy Center at Loma Linda University in southern California. As a manual therapist myself, and one who has many clients also struggling with neuropathy’s, I found this approach very intriguing.
When I called the Neuropathic Therapy Center to learn more, I was encouraged to set up an online conference call with Mark Bussell, PT, the primary developer of the work, to discuss my situation and determine if I would be a good candidate for this type of therapy. On that call we determined that I would be a good candidate for this therapy. As I live out of state, we also decided a good therapy option would be to schedule for a two-week intensive therapy regime which would screen for food sensitivities and during the same time frame receive physical therapy to facilitate improvement in neurovascular function.
I was found to be severely sensitive to dairy, sugar, chicken, almonds and moderately sensitive to gluten, mild to corn. These sensitivities are not to be confused with allergy, but foods that I am sensitive enough to that they cause a reaction to normal neurovascular circulation. Now knowing this and having had time for these things to clear my system I can definitely tell you that when I eat too much of any of these foods, I can feel a reaction or a triggering of symptoms.
It has been five weeks now since completing the two-week protocol. I have been very diligent with my diet and doing my daily exercises as part of the continuation of the physical therapy protocol. There have been ups and downs, diet modification is not easy. The neuropathy symptoms I am still aware of, but I can honestly say that overall, I feel that I have achieved nearly a fifty percent reduction in symptoms and with due diligence to the diet and exercise I feel that I am still continuing to make improvements.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for bettyg81pain @bettyg81pain

Where did you stay? How many days? What diet changes did you make? I'm sure they check each individual patient for the changes they should make. Thanks for your response!!

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This sounds promising. Has anyone gone to Loma Linda for trigeminal neuropathy?

Thank you

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Profile picture for leslierh @leslierh

Hi Jake!
I have less numbness and no stabbing pain in my feet. The stabbing pain is totally gone. I do stay strict with not eating foods that I'm sensitive to and I practice the exercises every day. Really impressed with no stabbing in my feet.
Leslie

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@leslierh
As far as the treatment at Loma is concerned, do you know if it helps more if you're a stage one or two versus stage three, four, or five? I was just curious if it was only beneficial for mild neuropathy or if it was also helpful for more severe cases.
What stage is your neuropathy?
Thanks much,
Jake

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You present an interesting case. I have celiac disease and I am ultrasensitive to gluten--it brought about my neuropathy as my neurologist told me. I was told to go on a strict gluten free diet which I adhere to. My problem began 3 months ago after having a shin shave biopsy which seems to have healed with scar tissue and nerve irritation. All for nothing as the lesion was benign. Now I am having some pain issues in my shin which were exacerbated by the cold winter--I might even have Raynaud's syndrome. It sounds like you got some good attention and detailed findings at Loma Linda. I am on the East Coast and cannot pick up and travel. I do have a good physiatrist at NYU Langone and he is aware of my issues and is treating me holistically. I so want to heal. I am also going to try to search out a doctor who specializes in Celiac disease.

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Profile picture for juliabasa @juliabasa

Hey guys! Just thought I’d add my experience with INF here as well, in case anyone interested happens upon this.

To give you some background, I was diagnosed with bilateral TOS (all three) in Dec. 2020, and had a surgical decompression Jan. 2021 (I was 19yo at the time, and had been suffering for years with no diagnosis). While the surgery helped alleviate my venous and arterial symptoms, I unfortunately did not get any relief from my neurogenic symptoms. I’m sure you all know just how stubborn neuropathy can be. Over two years post-op, I was still in immense pain and had tried everything I could possibly find to try and get some relief, to no avail. My dad came across INF when doing research into chronic pain therapies in the US (we are Canadian) and set up a consultation with Dr. Mark Bussell (DPT who developed the therapy). He changed my life.

I was treated by Dr. Bussell and another one of their physical therapists named Paul, however everyone at this clinic is extremely kind and very dedicated to making their patients feel better. Dr. Bussell is unlike any doctor I have ever come across: kind, compassionate, dedicated - it is easy to see how much he truly cares for his patients. I had 5 weeks of therapy, and now a home program to do myself, and for the first time in years, I am completely pain-free and off of all medications.

I also made major modifications to my diet. It seems I have a minor form of MCAS (probably from the trauma to my nervous system) and so I had inflammatory reactions to gluten, dairy, chicken/eggs and soy. Cutting these out of my diet helped immensely. The modifications can be difficult at first, but once you start noticing a difference in how you feel, it makes it much easier. I no longer have the desire to eat any of these foods (as they cause me pain)!

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@juliabasa I enjoyed your message. Can you please tell me what name of the dr that helped you so much ? I have had neuropathy. For 10-12 years and sure would like some help. Thanks so much

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