My doctors know nothing

Posted by Turkey, Volunteer Mentor @tomrennie, Jun 13, 2023

There seems to be a general distrust of all doctors. That is sad. No matter how much homework I do, no matter how much I read and study, no matter how many big words I can regurgitate, I am still not a doctor. I can find anything on the Internet to contradict everything my doctors have told me. I choose not to do that. I choose to work with them. We have cancer. Testing for it, treating it, and living with it is going to hurt. There is no avoiding it. But working with and trusting my doctors has significantly reduced my pancreatic NET tumors. My innumerable lesions on my liver have stabilized. 9 months of CAPTEM have made a huge difference. The first few months were hard. The CAPTEM made me so sick. But working with my doctors, we found some support meds that make the treatment tolerable. I am mid cycle, and I am going for a morning walk with my dog. Getting out of bed wasn't possible 9 months ago. I love my doctors.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

razorsharp | @razorsharp | Aug 19 10:43am

In reply to @jlsgt "razorsharp, I've got a joke for you. A dog can't read an MRI but a catscan..." + (show)

Very Funny

zacharycat | @zacharycat | Aug 19 11:14am

In reply to @tomrennie "It is all good. My wife created a spreadsheet with all of the meds that take...." + (show)

Along with the meds the pharmacy sent a kit with instruction booklet and some medications for diarrhea, vomiting and dry skin. These aren't problems I'm having though.
What I have is occasional dizziness, shortness of breath, and a couple of recent headaches. The booklet says these are signs of raised blood pressure, and indeed it was higher on my last hospital visit (130/95 instead of previous 120/85). For now it seems they are taking the wait and see approach with that. Meantime I need to get a home test kit.

Turkey, Volunteer Mentor | @tomrennie | Aug 19 12:39pm

In reply to @razorsharp "Tomorrow is a real big day for me > I'm off to the hospital to have..." + (show)

Good luck tomorrow. Please let me know how it goes. Ok?

Turkey, Volunteer Mentor | @tomrennie | Aug 19 1:54pm

In reply to @zacharycat "Along with the meds the pharmacy sent a kit with instruction booklet and some medications for..." + (show)

Blood pressure home test kit? Did you ever hear anything about the trial? I am curious. Thanks

razorsharp | @razorsharp | Aug 20 12:50am

In reply to @tomrennie "Blood pressure home test kit? Did you ever hear anything about the trial? I am curious...." + (show)

I have one of the Blood pressure testing things & it will give you a different reading each time but my Dr said not to worry about to much . Also if your reading are only 130/95 your doing ok mine go up to 176 to 182 sometimes LOL

zacharycat | @zacharycat | Aug 20 11:37am

In reply to @razorsharp "I have one of the Blood pressure testing things & it will give you a different..." + (show)

That's quite high. A friend with similar hypertension died suddenly last year. He was 7 years younger than me and seemed in great health aside from that. He called the ambulance for me once when I went hypoglycemic and passed out.

Turkey, Volunteer Mentor | @tomrennie | Aug 20 3:17pm

In reply to @razorsharp "I have one of the Blood pressure testing things & it will give you a different..." + (show)

Maybe you should try to relax a little and have some wine? Haha. Your high end is a wee bit high.

razorsharp | @razorsharp | Aug 21 12:07am

In reply to @tomrennie "Maybe you should try to relax a little and have some wine? Haha. Your high end..." + (show)

Thanks Buddy Yes I think I will do that, Maybe about 2 or 3 Glassier will do the trick LOL

razorsharp | @razorsharp | Aug 21 8:12am

In reply to @razorsharp "Thanks Buddy Yes I think I will do that, Maybe about 2 or 3 Glassier will..." + (show)

I Had my Pet Scan today and it showed I have more Cancer spots showing up on my Liver but it is still contain in the Live and Pancreatic which in one way is Ok, it just means the Immune treatment has not worked for me, So I think they
may put me back onto Chemo again, but I will find out on the 25/8 when I return to the Hospital and see the Dr there.