My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Revlimid, dara and carfilzomid instead of valcade I was on pre SCT

2/23/22 SCT didn't work.

Hi!
Thank you😊. The good news is that there are 2 persons who are unrelated
100% match!

He should be discharged in a day or two and I’ll receive training for
recovery at home. Recovery has gone well thus far in the hospital.

I know the time will go quickly before we move back to Rochester…. A pretty
nice place to live if you have to relocate short term. I appreciate your
help with all of this and I’ll be sure to check out the Thursday night
events😊

Good morning! You and your husband have been on my mind the past couple of days and up you pop! It’s a relief to hear he’s already had the surgery. Things are moving quickly!

It sounds like you’ve found a real gem to live in for the summer and are settling in nicely. I agree, your landlord sounds incredibly accommodating! What a lucky find! How’s your little dog adapting to the new life? Lots of new places to walk and sniff. ☺️

It’s good to hear you’re out exploring Rochester. It really is a wonderful city. My husband spent hours walking around the neighborhoods and the trails along Bear Creek and the river.
He’d tell me about all the wildlife and interesting spots he found. Finally, when I got strong enough I was able to join my husband for some shorter walks to see what he was talking about. Now, when we go to Rochester for my checkups, we both head out for an hour or two on the familiar trails. Rochester is our home away from home. ☺️

As your husband recovers from his surgery, there is a really fun event held every Thursday downtown you both might be enjoy. Vendors, food, music. It’s downtown near the Peace Plaza. https://www.downtownrochestermn.com/events/thursdaysdowntown

Wishing your husband a speedy recovery this week. ☺️
How’s the search for a stem cell donor coming along?

He has a positive attitude, which is great. I checked with property manager about the drapes and they said they would replace all with blinds. Best. Landlord. Ever!
My husband just had a splenectomy Friday to prepare for BMT. He’s up walking a bit yesterday and working on getting pain under control. They figure a 6 week recovery period pre BMT. While he is recovering in the hospital, I’ve been able to walk around the area to get my bearings. Very nice community.

Good morning. I know there’s a lot of information being tossed your way in preparation for your upcoming stay in Rochester. My husband and I went through the same thing. The logistics seemed a bit daunting. But it all works out. ☺️ Now, it’s our home away from home and we’re always eager to return for follow up appointments. It’s like coming home!

@gingerw brought brought up more points, such as the airing of the drapes and vacuuming again. Just make sure your husband is not in the same room when you’re doing that and that he is fully masked.
The mindset for you and your husband during transplant recovery has to be, in a word, Germaphobic. His immune system will be very compromised so he’ll need to avoid exposure to dusts, dirt, plants, soil etc.
I wanted to add, cover the sofa or wherever he’ll be sitting with a clean sheet. You don’t know who’s been on that sofa before or what illness they had.
Again, I’m not trying to overwhelm you, just getting you prepared for a little life change for a while.
When I had extended visits to the clinic, my husband would take that opportunity to spray the fabric furniture and drapes in our hotel apartment with Lysol spray.
I’m sure others will add some ideas here for you too. Just jot them down.
You’ll be getting guidance from his transplant team as well. In the meantime, I found a very comprehensive post-transplant guideline from another reputable clinic.
https://www.mskcc.org/pdf/cancer-care/patient-education/leaving-hospital-after-your-allogeneic-transplant
These are very similar to my Mayo guideline pamphlet so this will give you a heads up.
How’s your husband feeling about all of this?