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My biopsy is scheduled soon on my upper right thigh (sarcoma)
Since cancers have been in my family and the look on the doctors face , says it all .. I am already assuming a sarcoma in my upper thigh . Of course I do not like what I read and have been emotional since my evaluation yesterday .. Has anyone had a sarcoma removed in upper thigh ? I like to know what I am in for moving forward . Please respond .. I can deal with a lot being a NYC kid at heart , my 10 year old boy is my biggest concern . This part of life is difficult . My father passed away when I was 27 of prostrate . I am now , Same age group as him and now it’s my turn .. A different event yet in the same ball park .. . Can people survive a long time getting these sarcomas removed ? I never thought I would be reaching out …. I just know something is not right …. I know my body . God Bless everyone here .. I get it …
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Hello @sherrykb and welcome to Mayo Connect. It looks as if a sarcoma diagnosis is new to you. Did you discover this through a doctor's exam or were you aware of something and then went to the doctor?
I look forward to hearing from you again.
@satrica1, have you considered where to go for the biopsy? Might MD Anderson in Houston or Mayo Clinic in Jacksonville be an option for you?
Hi @sherrykb, you said that you too just received a diagnosis. Do you also have sarcoma? What type? Have you discussed treatment options yet? How are you doing?
(Too many questions. Sorry.)
@colleenyoung
Good morning Colleen, just diagnosed with sarcoma, believed to be Synovial. Upper right leg, seem to be 12 cm and growing. Was following posts from Rond 306, since I maybe going down a similar path. Any idea what happen to him? Thank you. Joe
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1 Reaction@jennifer0726
Good morning Jen, hope all is well your way. I just was diagnosed with sarcoma, believed to be Synovial. Upper right leg, seem to be 12 cm and growing. Was following posts from Rond 306, since I maybe going down a similar path. Any idea what happen to him? Thank you. Joe
@moejoe67
Good morning, Joe. I am sorry to hear of your diagnosis. I have not heard anything from @rond306 for a long time. I sure hope he is doing well and busy living life.
Please search for a Sarcoma specialist for your treatment or at least someone who will collaborate with a top specialist. Where are you located? It sounds like you need staging and a treatment plan ASAP. Take care and keep us updated. -Jennifer
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1 ReactionHi Jennifer, I go in for a PET scan tomorrow and then meeting with a sarcoma specialist at the University of Cincinnati Cancer Center. I also have a very good friend from 2nd grade (I am 67):) who is an oncologist and continues to give me great direction and intel. I hope to share some of his recommendation with the group. He is on the cutting edge of some of the therapies for various cancers. Hope you have a wonderful day!
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3 Reactions@moejoe67, I'm tagging @rond306 to let them know their journey was helpful to you.
Joe, a 12 cm tumor and growing must be daunting. How are you doing? What treatment is being recommended?
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1 Reaction@moejoe67
Hi Joe, hoping your Pet Scan went well and you have more answers. Are you still waiting for the biopsy? I am so glad you have your oncologist friend for info and support,’ Please keep us updated. Thinking of you!