My 37 yr old son will need a liver, I’m 64 could I be a good candidate as a live donor?
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Welcome to Connect @ellgi, I’d like to introduce you to other members who shared their liver transplant. experiences (both recipients and donors). You may appreciate reading the messages on this thread. https://connect.mayoclinic.org/discussion/liver-transplant-for-primary-biliary-cirrhosis-pbc/
I’m also tagging @rosemarya @wmoser2613 to join the discussion here. They both have had a liver transplant. @coastalgirl received a kidney transplant from a living donor and @uneeq1 is a living kidney donor.
@ellgi, I’m sure you have many questions as your son prepares for needing a liver transplant. Sharing with people who have been there can help. Is your son currently on a transplant list?
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I can’t find your last message now but thank you for it! I too am a praying woman and I am a child of the Most High! As is my son. I do appreciate greatly your advice.
I had a liver transplant five years ago… And I initially started my review at Yale transplant center… I had a wonderful pathologist Hepatologist who strongly suggested to me to go south… Meaning southern United States because that is the only place where there is many young people that can become donors for your son . By donors I mean people that unfortunately die or have accidents.
Giving part of your liver to your son is a wonderful idea but you must realize that the operation on you will be just as intense as the operation on your son.
I would suggest that you travel to Florida Mayo Clinic it does the largest amount of liver transplants in the United States. Five years ago it was strongly suggested that having donor livers was a great option… I believe even at Mayo this is become an option of last resort.
Good luck my prayers are with you!
Dear @ellgi , I am thinking about you and your son. I hope that there is some forward movement. I wish you both patience and hope on your step-by-step journey. May you enjoy some special blessings today. Rosemary
I appreciate this information. Can late stage cirrhosis have the improvement potential you mention?
HI, I am still in evaluation, but when I was first diagnosed ended up in the ICU severely decompensated. I went in for an infection in my leg where I had injured myself. When the Dr. told me I had ESLD(laennec’s cirrhosis-alcoholic) and the ramifications of such a diagnosis,, all I could think was that this was the end. But when I was discharged I knew I didn’t want to cash out. I am only in my 40s. So the first thing I did was realize that alcohol was what would kill me, so I quit. This has to be the number one priority! It was a little tough for a while,but as time passed I lost any desire. I have a saying that you will never quit anything unless you really want to.My desire to stay alive was greater by far than my desire for a beer.It has been a little over 3 yrs. The other thing you have to make yourself do is take prescribed medications as directed. This was difficult for me as I had never even taken aspirin before, so the nausea was terrible. It took about a year before I could handle it. Diet is also difficult. As a mechanic and parts man all my life .most of my meals came out of a paper bag and were eaten standing up while working. Breakfast was a coffee and a bagel with about 3 cigarettes for a chaser.(P.S. quit smoking the same way 10 yrs ago, just decided I really wanted to) But After multiple visits to the nutritionist I have about got that handled.I said all that to say this, I still have ESLD. However, with the changes I have made in my lifestyle I am doing OK., all things considered. I still need a transplant, and the disease is still progressing,,but not as fast ,I think. I still have problems that sometimes land me in the hospital.,But the upside is sometimes I feel almost normal for a couple of days here and there. I am pretty sure I would have never made it this far if I hadn’t changed my ways. As a matter of fact I can say with some certainty that I probably would not be here.If you listen to your Hepatolagist and follow their instructions, you can slow down the progression in most cases, and feel a little better than you did.You probably won’t enter any triathelons, but it’s nice to have enough energy to get to the mailbox and back .Like I tell people, vomiting a couple times a week is still better than everyday. Also,let me apologize for this rambling reply Never give up! Good luck I am hoping the best for you.
Thank you for your insight I greatly appreciate
Your welcome! Anytime.
Dear Crew ,
Good note ,,,, good luck
Keep up the hard work and get yourself listed at mutilple liver transplant centers …!!!!
Go to Florida Mayo in Jacksonville……
The are very good
DG 5 years and counting
thanx. I am already a patient at Mayo Jacksonville. I agree they are excellent! Far and away the best hospital I have ever had the need to visit, and there have been a few.
Let me first say what a great job!! I am so happy that you have been able to make these positive lifestyle changes. I totally agree that our choices in life can make or break us.
Keep up the great work and it will continue to pay off!!
I truly wish you God’s speed:))
Lifestyle changes have an affect on some patients with fatty liver disease. Changes in salt intake and reductions of red-meat can lessen stress on a diseased liver, but it is my understanding that there is nothing that will revers end stage liver disease.
Hi Patti, welcome to Connect. Thank you for adding to this discussion about lifestyle affects on the liver.
If you’re comfortable sharing more, we’d like to learn more about you. Do you have experience with liver disease? What brings you to Connect?
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