MVD surgery for Hemifacial Spasms

Posted by skullzmarie @skullzmarie, Apr 27, 2017

I just recently had microvascular decompression (MVD) for hemifacial spasms. Tomorrow will be 1 week post-op. I have been told to expect nausea and dizziness because of the part of the brain where the surgery is performed. Surgery went well with no complications. I’m struggling with continued nausea and vomiting when I eat. Yesterday, I was diagnosed with a UTI after having a yoyoing fever, cold chills, hot sweats, and tremors (we believe the tremors are stress induced from surgery). I had a complete work up and was given nausea meds and antibiotics. I had nausea but was able to hold food down yesterday for the first time. The nausea meds made me sick last night. Today, I have taken my pain medication only once. But I am concerned about the vomiting. I plan on speaking with the neurosurgeon tomorrow about the continued vomiting. Today, I have noticed a change in taste. My meds taste normal than wierd. My lunch tasted normal at first then it begain to taste off. This evening, I noticed I will occasionally taste the saline solution that was used to flush my IV. I’m wondering what others have experienced. How long does the nausea and vomiting last for most people? What side effects have you had? I’m so frustsrated and ready to complete this recovery. Please, please, share your experience with me. I’m starting to wonder if the surgery was really worth it…the way that I’m feeling. Thank you for your time.

@michelles123

Hello – I was just diagnosed yesterday. I was so happy to find this group.
I noticed my symptoms starting March 2018 and the twitching just keeps getting worse. I cannot get in to see a movement specialist until June 2019. Each Neurologist that I saw said it wasn’t their expertise. (This has been so frustrating).
Does anyone know what causes this?

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Hello @michelles123

As it has been a while since you first posted, I was just thinking about you and wondering if you found a doctor who can treat your problem.
If you are comfortable doing so, will you post an update?

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@jmajbk

I have had HS for 25 years Botox works great but you have to inject every 5to 6 months. I am going though acupuncture treatment s now and they are definitely helping me.

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Hello – thanks for sharing. I have my initial consult in February at Froedtert. I’m hoping for other options than surgery.

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@michelles123

Hello – thanks for sharing. I have my initial consult in February at Froedtert. I’m hoping for other options than surgery.

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@michelles123
I hope that consult goes well!

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@johnbishop

@michelles123
I'd like to add my welcome to Lisa's and also welcome you to Connect. I'm really happy to see that you are reaching out to learn as much as you can about your rare disorder. I did find an interesting article in the Journal of Neurosurgery that might be helpful in learning more.

An investigation into quality of life improvement in patients undergoing microvascular decompression for hemifacial spasm
https://thejns.org/view/journals/j-neurosurg/128/1/article-p193.xml

John

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John – Thank you for the article.
Michelle

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@michelles123

Hello – thanks for sharing. I have my initial consult in February at Froedtert. I’m hoping for other options than surgery.

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@michelles123 I just googled "Froedert" and see that it is a neurological hospital in Milwaukee. I had not heard of it before. Is that where you are going" How did you hear about it?

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@michelles123

John – Thank you for the article.
Michelle

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John – it just shows a paragraph or two and asks for $35 to view.
Any suggestions?
Michelle

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@hopeful33250

@michelles123 I just googled "Froedert" and see that it is a neurological hospital in Milwaukee. I had not heard of it before. Is that where you are going" How did you hear about it?

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Hi – I have other Drs there. But I am skeptical since no one has recommended her.
Michelle

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@michelles123

John – it just shows a paragraph or two and asks for $35 to view.
Any suggestions?
Michelle

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Hi Michelle @michelles123, I used Google Scholar (https://scholar.google.com/) which finds a lot of research type articles and books that are sometimes not free but it will show you the abstract which is sometimes useful. I thought that it showed me the complete article when I first clicked on the link. I did another search on Google Scholar using the phrase "microvascular decompression for hemifacial spasm" and it found quite a bit of information. Here are the search results:

https://scholar.google.com/scholar?hl=en&as_sdt=1%2C24&as_ylo=2019&as_vis=1&q=microvascular+decompression+for+hemifacial+spasm&btnG=

Here's the first link that is shown and it is one that doesn't have a cost associated to view it. It's from Science Direct.

Transposition of posterior inferior cerebellar artery could have caused ischemic complication in microvascular decompression for hemifacial spasm
https://www.sciencedirect.com/science/article/pii/S2214751918302573

Hopefully this helps…

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In reply to @jnetten "April 6th" + (show)
@jnetten

I see it has been a while since you posted but wondering if the spasms your son experienced after surgery have gone away. Currently having same issue.

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@levine138

I see it has been a while since you posted but wondering if the spasms your son experienced after surgery have gone away. Currently having same issue.

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Hi, @levine138 – welcome to Mayo Clinic Connect. Just to clarify, you had microvascular decompression (MVD) for hemifacial spasms and are now experiencing spasms again? If so, how does your doctor suggested proceeding?

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@jmh

I had surgery 5 weeks ago for my hemifacial spasms and have nausea that comes and goes, lightheadedness at times when I go for my power walk and spasms seem to still appear at times. Anyone had the same experience?.

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Hello @jmh and welcome to Mayo Connect. I'm not familiar with this disorder but I am sorry to hear of the post-surgery problems you are having. Did your doctor indicate that these symptoms are normal?

For those of us who are unfamiliar with this type of surgery, could you describe for us what happens when this surgery is performed?

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@jmh

I had surgery 5 weeks ago for my hemifacial spasms and have nausea that comes and goes, lightheadedness at times when I go for my power walk and spasms seem to still appear at times. Anyone had the same experience?.

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Oh I thought I was in the right group be cause I read a lot of posts regarding this disorder. Anyways,surgery involves decompression of a cranial nerve by placing a sponge between the nerve and blood vessel to stop the spasms and twitching. The nurses on the unit I was on did say I may be nauseaous a bit but I was hoping to hear from others who had this surgery. I am maybe too impatient and want to get back to regularly working out and find I am not quite right yet.

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@jmh

I had surgery 5 weeks ago for my hemifacial spasms and have nausea that comes and goes, lightheadedness at times when I go for my power walk and spasms seem to still appear at times. Anyone had the same experience?.

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I'd like to invite @levine138 and @michelles123 to join this conversation as they have had this surgery as well. Perhaps they can shed some light on your post-surgery symptoms.

Liked by Lisa Lucier

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@jmh

Oh I thought I was in the right group be cause I read a lot of posts regarding this disorder. Anyways,surgery involves decompression of a cranial nerve by placing a sponge between the nerve and blood vessel to stop the spasms and twitching. The nurses on the unit I was on did say I may be nauseaous a bit but I was hoping to hear from others who had this surgery. I am maybe too impatient and want to get back to regularly working out and find I am not quite right yet.

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I am seeing the surgeon Jan 2

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@jmh

I am seeing the surgeon Jan 2

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I hope that appointment will clear up your concerns, @jmh.

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