Muscle Twitches Throughout Body

That all sounds very unnerving. I have RLS and it doesn’t sound like that and yours is whole body not just legs. It’s not uncommon for people to have leg jerks when falling asleep but again your issues are full body and also while awake. The jaw issue is especially odd and concerning. It all sounds like myoclonus but primary or secondary? Neurological issues can be so weird and frustrating. Sorry you’re going through this.

I’d pursue a consult with a neurologist for a full neurological evaluation. Can you see a different doctor for a referral?

Followup to my previous response that myoclonus is just the first thing that came to my mind and just a possibility. I’m not a doctor which is why you really need a neurologist. Maybe you have RLS as well as it seems to be common but that wouldn’t explain all your symptoms. I hope you can find some answers.

Agree with Zebra, Better to make an appt asap, as it takes months some times to get in, depending in your location and availability. I have made appts with the NP (easier to see sometimes) for sooner, but always get an actual Neuro appt on the books. Best Wishes for it all to be no big deal, but it is worrisome.

Thanks everyone. Doctor won’t give me a referral for neuro. I’m thinking I’ll have to go In several times before I get one.

I’m doing a sleep study in Sept. This will help them rule out sleep apnea, which I don’t have.

I have symptoms identical to this. I have been diagnosed with functional neurological disorder. Mine started after a stupid foot procedure. I have muscle twitches all over my body, especially when I lay down. I have right sided weakness in my leg and foot. My legs sometimes feel like jello underneath me. I also have poor balance on my right side and an altered gait at times. These are the symptoms I had when I was diagnosed.

Since then, I have also developed hand and arm tremor, abnormal trunk movement, speech issues and more. It’s the gift that keeps on giving.

I would definitely request a neuro consult. Certainly not saying this is what you have. But the symptoms sound similar. I had a brain and spine MRI that were normal. The neurologist did several movement tests. Treatment is lots of different therapies.

I have had the same thing for 20 years. Got tested for a bunch of stuff. Finally was diagnosed by my Neurologist having BFS (Benign fasciculation syndrome). About 4 years ago I developed idiopathic peripheral neuropathy in my feet. I’m sure they are related. Get an EMG done for peace of mind. Anything serious would present clinical weakness. Twitching alone by itself as you describe is annoying, but typically benign. I hope you feel better soon.

Yes, symptoms sound a lot like bfs but obviously it could be something different. Best to follow up with a neuro. If you don’t get a referral, do it on your own and ask to be notified of any cancellations so you get in sooner. Where are you located? Do you have access to a broad base of docs? Good luck, you will be ok.

Oh, wow. Does sound similar. I’m curious as to what your gait was like during an episode?

I’ve had one event where it felt like my legs weren’t in sync with the movement of the upper half or one another. Not sure how else to explain it. The pelvic area felt weak and the rest was almost like a puppet held together by skin.

It’s more than annoying, because it’s a new symptom and is making me nervous. Sometime the twitch is over a larger area and other times not.

Have you ever had a twitch where your whole hand (s) move? I’m also getting it in my bladder.

Thanks for the response!

Also, what is the abnormal trunk movement like!?