Sorry to take so long to get back to you. We are going for the Syn-one test soon. I live in Maine and getting help here is dire. The "rash" was a breakdown of nerves under the skin. Things have been bad..onward,
@shelleystolfi, I am so sorry to hear things have been bad. And, the reason for the rash makes sense. Is it under control now? My Syn-One test was normal, but I still continue to have all the same symptoms. Backache and leg weakness are two new ones. I am sure you are meeting yourself coming and going with everything on your plate. How is your husband’s mood? Is he having any normalcy of life? It is just heartbreaking for a person of his age to be in this condition it should be a time for winding down and looking forward to retirement. I am keeping you both in my prayers. 🙏
Sorry to take so long to get back to you. We are going for the Syn-one test soon. I live in Maine and getting help here is dire. The "rash" was a breakdown of nerves under the skin. Things have been bad..onward,
Just dove into this discussion. @shelleystolfi
Toothakers here in ME. Parkinson’s Plus diagnosis. MSA fits my husband to a T. Home from ER this AM with uncontrolled hypertension. 225/107. Took Hydralazine. We are long on this path but still seeking symptom management tips. Have not done mayo workup. Have team in FL.
Just dove into this discussion. @shelleystolfi
Toothakers here in ME. Parkinson’s Plus diagnosis. MSA fits my husband to a T. Home from ER this AM with uncontrolled hypertension. 225/107. Took Hydralazine. We are long on this path but still seeking symptom management tips. Have not done mayo workup. Have team in FL.
@junetooth, Are you having a work up at Mayo Florida. Have you had Syn-One skin test or any other testing or is it by clinical suspicion. I had super high b/p that would not respond to meds about a year ago, but that seems to have subsided. No dx for anything just a lot of weird symptoms. One odd thing I noticed when I had this, I have post meal b/p drops, so eating especially carbs would bring my b/p down. Such an odd laundry list of symptoms. Take care, as best you can. 😊 🙏
Sorry to take so long to get back to you. We are going for the Syn-one test soon. I live in Maine and getting help here is dire. The "rash" was a breakdown of nerves under the skin. Things have been bad..onward,
I had the test, result was normal, but I still have all the same misery and symptoms. Now what? I never knew life could be so miserable and hopeless. Hope your days are better and that by some miracle, your husband does not have MSA, but what is the cause of the symptoms if not. God bless.
I had the test, result was normal, but I still have all the same misery and symptoms. Now what? I never knew life could be so miserable and hopeless. Hope your days are better and that by some miracle, your husband does not have MSA, but what is the cause of the symptoms if not. God bless.
I’m sorry you have no answers. I read recently that MSA, Parkinson’s and MS have similar presenting symptoms. If you have the energy research that overlap. Blessings to you.
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@shelleystolfi, I am so sorry to hear things have been bad. And, the reason for the rash makes sense. Is it under control now? My Syn-One test was normal, but I still continue to have all the same symptoms. Backache and leg weakness are two new ones. I am sure you are meeting yourself coming and going with everything on your plate. How is your husband’s mood? Is he having any normalcy of life? It is just heartbreaking for a person of his age to be in this condition it should be a time for winding down and looking forward to retirement. I am keeping you both in my prayers. 🙏
Just dove into this discussion. @shelleystolfi
Toothakers here in ME. Parkinson’s Plus diagnosis. MSA fits my husband to a T. Home from ER this AM with uncontrolled hypertension. 225/107. Took Hydralazine. We are long on this path but still seeking symptom management tips. Have not done mayo workup. Have team in FL.
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1 Reaction@junetooth, Are you having a work up at Mayo Florida. Have you had Syn-One skin test or any other testing or is it by clinical suspicion. I had super high b/p that would not respond to meds about a year ago, but that seems to have subsided. No dx for anything just a lot of weird symptoms. One odd thing I noticed when I had this, I have post meal b/p drops, so eating especially carbs would bring my b/p down. Such an odd laundry list of symptoms. Take care, as best you can. 😊 🙏
I had the test, result was normal, but I still have all the same misery and symptoms. Now what? I never knew life could be so miserable and hopeless. Hope your days are better and that by some miracle, your husband does not have MSA, but what is the cause of the symptoms if not. God bless.
I’m sorry you have no answers. I read recently that MSA, Parkinson’s and MS have similar presenting symptoms. If you have the energy research that overlap. Blessings to you.
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Helpful -
Hug
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