1. < Blood Cancers & Disorders

Want to talk about Multiple Myeloma: Anyone else?

Posted by Frazer 1 @frazer1, Apr 11, 2012

Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find our next week if it has progress to Smoldering Myeloma.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

buckaroobanzai | @buckaroobanzai | Jul 1, 2023
In reply to @gingerw "Yep, I learned to do that, also, Makes a huge difference! Took a concentrated effort for..." + (show)
@gingerw

Yep, I learned to do that, also, Makes a huge difference! Took a concentrated effort for me to relax. and, I usually try to talk about something unrelated to the injection. Even something as simple as complimenting the nurse on the color of her uniform that day.

In my old age now, I sometimes talk, and remind myself out loud to relax my shoulder and arm before an injection. Of course, I have to do that when I am using a curb also, to step right foot first, since left leg/foot has no feeling. More than once I have taken a tumble, even with my cane!
Ginger

Jump to this post

Verbal reminders are a GREAT idea.

For some strange reason, just reminding myself to relax doesn't work. So I just pretend that my arm doesn't belong to me; I let it literally hang from my shoulder socket as it were a puppet arm or just a sleeve.

REPLY
gloriafuerza | @gloriafuerza | Jul 8 6:29pm

Hola, si, a mi me detectaron Mieloma Multiple en Setiembre y estoy en tratamiento desde Octubre. Me ha ido bien anque me hincho mucho por la Dexametasona que me ponen por la vena muy seguido durante el tratamiento. Saludos, Gloriafuerza

REPLY
1 reply
Mentor
Lori, Volunteer Mentor | @loribmt | Jul 9 8:25am
In reply to @gloriafuerza "Hola, si, a mi me detectaron Mieloma Multiple en Setiembre y estoy en tratamiento desde Octubre...." + (show)
@gloriafuerza

Hola, si, a mi me detectaron Mieloma Multiple en Setiembre y estoy en tratamiento desde Octubre. Me ha ido bien anque me hincho mucho por la Dexametasona que me ponen por la vena muy seguido durante el tratamiento. Saludos, Gloriafuerza

Jump to this post

Hi Gloria, Welcome to Connect! It’s very encouraging that you’re having success with your treatments for Multiple Myeloma. I’m sorry to hear you’re having swelling after the Dexamethasone infusions. That is one of the potential side effects of Dexa. It’s a good idea if you can, to take frequent walks during the day and then elevate your feet over your heart for 20 minutes or so, every couple of hours. (Lie on a sofa with your feet up on the back, for example) That can help reduce swelling your feet are puffy. Is this primarily in your feet and ankles or your hands too?

REPLY
1 reply
gloriafuerza | @gloriafuerza | Jul 9 8:43am
In reply to @loribmt "Hi Gloria, Welcome to Connect! It’s very encouraging that you’re having success with your treatments for..." + (show)
@loribmt

Hi Gloria, Welcome to Connect! It’s very encouraging that you’re having success with your treatments for Multiple Myeloma. I’m sorry to hear you’re having swelling after the Dexamethasone infusions. That is one of the potential side effects of Dexa. It’s a good idea if you can, to take frequent walks during the day and then elevate your feet over your heart for 20 minutes or so, every couple of hours. (Lie on a sofa with your feet up on the back, for example) That can help reduce swelling your feet are puffy. Is this primarily in your feet and ankles or your hands too?

Jump to this post

Hello Lori, thanks for your advise. Fortunately, It’s only with my feet. My hands are perfect. I will try to walk. And of course I put my feet up. Gloria

REPLY
View MoreView Less
Please sign in or register to post a reply.