Want to talk about Multiple Myeloma: Anyone else?

On the same path with my husband. Diagnosed in November and started induction treatment in Dec. He will start his 4th cycle of induction therapy tomorrow. We live in Sacramento and plan to have an outpatient transplant at UCD. Has anyone else gone the outpatient route? Nervous about having him come home.

That question is for a good resercher f MM, my wife had the bone marrow transplant and also the Cart t cell and did not work. But in most of the cases work, your DNA establishes the rules

I was 64 when I had my last of 4 stem cell transplants, an allo. The hospital’s transplant review doctors based their decision on whether I had a reasonable chance to survive the proposed SCT on their assessment of my mental and physical strength. Doing daily exercise and being active were key reasons they agreed to do this one. It put me in remission, where I’ve been the last decade.
This and other lessons we’ve learned are covered in 4 minute YouTube videos. Search 30 year myeloma survivor Patient 007 to watch.

@callie28 , @judithc I hope to give you a little information and/or encouragement with my husbands story.
He was diagnosed in spring of 2010, the first transplant at Mayo Rochester left him with a little residual disease. So they gave his body a few more months to recover and as the myeloma reared up, he went on a second induction therapy of 4 months, and back to transplant. By this time he was 70 but overall still in pretty good shape. This transplant was much harder on him, although the first wasn’t really easy. Again the Mayo team were rock stars in knowing what to expect and handling it.
This time he got a complete response, revlomid maintenance was recommended and he took that for two years.
He has had a few years at a time completely treatment free, and plenty of months of treatment that weren’t really easy, but not horrible. He will soon reach 13 years with myeloma, I believe this might have been an easier time had he been diagnosed earlier. He had bone lesions in virtually every bone when diagnosed. I believe his Mayo team and our most awesome Mayo trained doctor locally, have helped give us the gift of the last 13 years together.
If you have any questions for me, please feel free to tag me.
@judithc where do think you might be looking to have transplant?

I’d like to hear results of stem cell transplants. I’m trying to decide whether to get a transplant or maintain my MM with chemo. I am a 74 year woman in good health but my age is a big concern. My understanding of transplants is it is hard on your body and could cause damage to your organs and you are very susceptible to infections.
I’d like to hear from someone around my age that had to make this decision and what they decided to do and how it turned out. I was diagnosed with multiple myeloma July 2022 with 45% cancer in my bone marrow. I am now at 10%.
Any info would be helpful.

<p>I have been diagnosed with MM stage 1. I am considering treatment at Mayo Clinic. <br /> The challenge is that I live in CA. If there are any out of town folks who have been treated at Mayo I would very much like to hear the pros and cons that you experienced and how it worked.</p>

@callie28 , @judithc I hope to give you a little information and/or encouragement with my husbands story.
He was diagnosed in spring of 2010, the first transplant at Mayo Rochester left him with a little residual disease. So they gave his body a few more months to recover and as the myeloma reared up, he went on a second induction therapy of 4 months, and back to transplant. By this time he was 70 but overall still in pretty good shape. This transplant was much harder on him, although the first wasn’t really easy. Again the Mayo team were rock stars in knowing what to expect and handling it.
This time he got a complete response, revlomid maintenance was recommended and he took that for two years.
He has had a few years at a time completely treatment free, and plenty of months of treatment that weren’t really easy, but not horrible. He will soon reach 13 years with myeloma, I believe this might have been an easier time had he been diagnosed earlier. He had bone lesions in virtually every bone when diagnosed. I believe his Mayo team and our most awesome Mayo trained doctor locally, have helped give us the gift of the last 13 years together.
If you have any questions for me, please feel free to tag me.
@judithc where do think you might be looking to have transplant?

My mother who was 77 in 2015. Found out she had mm in December. After she fell and broke her back. She stayed in bed at home until I called an ambulance for her in late February. She passed away April 1st. But the reason was because they started her chemotherapy, then gave her a colonoscopy bag, then put her in surgery for a pick line for the chemo. Her body was very weak by then and she contracted staff infection. Which she couldn’t fight off. When doctors tell you what they want to do to your loved one you think they know what they should do but I think sometimes we should consider if they need some time to get stronger after surgery especially if they are on chemotherapy. Just my opinion.

I’d like to hear results of stem cell transplants. I’m trying to decide whether to get a transplant or maintain my MM with chemo. I am a 74 year woman in good health but my age is a big concern. My understanding of transplants is it is hard on your body and could cause damage to your organs and you are very susceptible to infections.
I’d like to hear from someone around my age that had to make this decision and what they decided to do and how it turned out. I was diagnosed with multiple myeloma July 2022 with 45% cancer in my bone marrow. I am now at 10%.
Any info would be helpful.